Anyone received platelets as a treatment? - U... - CLL Support

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Anyone received platelets as a treatment? - UPDATE

Wifey21 profile image
16 Replies

Well, having been tested I received a letter last weekend to say I'd passed! Apparently, only 50% of applicants are passed to donate platelets. Rang the Blood service yesterday & booked in for my first platelet donation! They told me my blood group is especially sought (A-ve).

Thanks for all the encouragement & feedback. It helped me make the decision, as it's a 120 mile round trip each time!

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Wifey21 profile image
Wifey21
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16 Replies
Panz profile image
Panz

God Bless Your! Our blood and platelets donor are our life line…thanks so very much!!!

Panz 💕🙂☘️🙏🌈👍

gardening-girl profile image
gardening-girl

Wifey21, I received platelets following apheresis for collection of CD34 stem cells. Thank you so much for becoming a platelet donor!

Until my CLL diagnosis I donated whole blood regularly. Now, due to my need for regular IVIG infusions I am dependent on the blood donations of others.

Accordion profile image
Accordion

Thank you!❤️

PaulaS profile image
PaulaSVolunteer

Thank you Wifey. A hundred and twenty mile round trip each time is no small thing.

Paula

Handley profile image
Handley

A huge thank you Wifey for being so kind and thinking of others! I needed 2 units of platelets during surgery recently. I have CLL, my platelets were down to 50 and the prostate is in an area where there are so many blood vessels - and still I bled profusely. You are one of a special group of people who give readily to those who so often forget to say a big 'thank you'. You really are a life-saver! Handley

Wifey21 profile image
Wifey21 in reply to Handley

Thank you Handley. You mention prostate. What was the surgery?

AussieNeil profile image
AussieNeilAdministrator

Thank you Wifey, Transfused platelets only last about 4 days, so it's very, very frightening when you are platelet transfusion dependent. Mine bottomed out at 29 during my treatment and I was ill at the time, so had they dropped under 20, I would have qualified. I also have had an incredible return on my blood bank donation investment, now needing IgG every week.

Neil

Handley profile image
Handley

I had a TURP for a benign enlargement which was getting me up (frequency) 4-6 times pn and was struggling to void properly. I'd had a Urolift 4 yrs earlier which helped a bit but only temporarily as the prostate continued to grow. I was taken off thinners (atrial fibrillation) 2 days before the op, given 2 units of platelets during op, and all was OK - BUT they put me back on thinners far too soon afterwards (3 days). I bled like a fish and blocked up and had to be rushed back during the night. More irrigated catheters and flushing (pretty dire experiences) leading after a week to return to surgery for cauterization and general clean out. Well, you did ask!!!

However, 2 months down the track, I can now report all's so much better 'down below' and I have an 18yr old urinary function now (if my memory serves me right!). There are one or two sacrifices to do with reproductive functions now committed to history, but I think I can live with that! Hope this helps? It would have been a doddle if I hadn't resumed anticoagulants too soon. Handley

Wifey21 profile image
Wifey21 in reply to Handley

It just shows how important & varied the use of platelets are! Hadn't considered it much before.

Handley profile image
Handley in reply to Wifey21

You're right. One only starts to think about them if you suddenly need them! Thanks from us all - Handley

LeoPa profile image
LeoPa

I love you! In a non-creepy platonic way of course 😘

Wifey21 profile image
Wifey21 in reply to LeoPa

😂😂

noeagaman profile image
noeagaman

Thank you so much for doing this Wifey21! I needed platelets every few days after chemo for my CLL knocked my blood counts down. That went on for about two months. Now I get IVIG infusions which are also a blood product. People like you are our life line to good health. Thank you so much!

Chris

DawnRedwood profile image
DawnRedwood

That's wonderful of you to donate platelets. I had a platelet transfusion when I was in the hospital. In fact twice during that stay. (What surprised me was that platelets are yellow! Didn't know that.) I'm sure it helped me a lot to have received them, along with the 8 blood transfusions. I used to donate blood years ago.

casanova profile image
casanova

Another big thank you Wifey21. Travelling so far to donate is certainly above and beyond. So many of us with CLL have needed blood products to survive and are extremely grateful to all donors.

Like Aussie Neil, I too have had an incredible return on blood donations given prior to my diagnosis having received platelets, blood transfusions and IgG. Thank you.

Maureen UK

lexie profile image
lexie

Thank you! My husband received platelets which made a big difference for him as he waited for an organ transplant. Thanks to you and others who donate.

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