Both me and my husband ( CLL) have Covid - CLL Support

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Both me and my husband ( CLL) have Covid

ikahan profile image
10 Replies

I got it first about 10 days ago and my husband got it a few days later from me. We both started Paxlovid within a day of symptoms. Symptoms were relatively mild for him and even milder for me.

The problem that we are having is that I still test positive and now I feel as if my mild symptoms are coming back. ( stuffy and runny nose )

My husband just tested negative on the rapid test.

We are both 70.

My question is are we giving it back and forth to each other or I am getting a rebound ?

I am worried about giving it back to my husband. We live in a 2 bedroom, 2bath condo and we seem to have trouble completely isolating.

Thank you

Ileana

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ikahan profile image
ikahan
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10 Replies
Elle_V profile image
Elle_V

Hi Ileana,Have you tried masking in the condo? My kids are in elementary school and have been sick several times since September (not Covid). Sadly, I mask if I need to be very close to them 😔 and luckily haven't caught anything. I also have a couple of air purifiers, one big one for our living room and a small one for my bedroom.

ikahan profile image
ikahan in reply to Elle_V

Thank you so much Elle for answering me. Very good suggestions. I started wearing the mask and I will be purchasing a couple of air filters.

Ileana

mdsp7 profile image
mdsp7

Perhaps you can get another round of Paxlovid? It is frustrating to feel you are all better (finallly!) from that scary illness, to test negative, yay, but then soon find that, in fact, you are getting sick with Covid yet again. After testing negative 8 days following finishing the Paxlovid, I visited with my grandchildren and became sick again. Maybe I caught it from the baby. Maybe I was just having a rebound. In any case, I had test that revealed that I was infected with a lot of virus so I was given a second prescription and isolated.

The second dose made me well. Also, silver lining, during the Paxlovid treatments I noticed that a refractory plantar wart that has (had?) plagued me since shortly before I was diagnosed with CLL in 2008 had started to fade out. It is still going away, which feels almost unbelievable, but I'll take it!

I hope you and your husband both get well soon and also find some silver lining to the whole Covid experience. One note of caution: I think it might be a good idea to come back to strenuous activity slowly. Just before Thanksgiving a dear friend who is (was) a marathon runner died of a sudden heart attack when he went back to running a few weeks after having had covid. We are all so sad. He had been active and healthy!

ikahan profile image
ikahan in reply to mdsp7

Thank you for your helpful advice.

Ileana

KatieBlue profile image
KatieBlue

A friend of mine got covid with no paxlovid and it took her 15 days to get a negative test. Her mother, who lives with her, tested positive and with symptoms 2 days after my friend was first positive and symptomatic.

The friend was denied paxlovid; her mother was able to start paxlovid the same day as her positive covid test. She took 19 days before testing negative. She did feel a bit of improvement a few days into paxlovid, but worsened a couple days after finishing the paxlovid. We honestly weren’t sure she would pull through.

This was at the beginning of December and neither one of them are feeling they way they felt prior to covid.

Indie1234 profile image
Indie1234 in reply to KatieBlue

I remained positive for almost four weeks. Had a very severe bout of covid, hospitalised and three lots of paxlovid. Struggling with long covid now.

Indie

Pageboy profile image
Pageboy

I would imagine you are experiencing Paxlovid ‘rebound’. Rather than a new bout of Covid you have lingering symptoms the Paxlovid didn’t quite get rid of. As for passing it back to your husband, it is unlikely, but I wasn’t sure about this either so stayed away from friends as it was near Christmas and I didn’t want to be responsible for passing it on. My immediate family, however, are on the younger side and not vulnerable and I mixed freely with them. None of them caught it from me. Hope you’re better soon. It can take a long time to test negative, unfortunately. It’s frustrating. I was positive (after Paxlovid) for about two and half weeks.

RSilver profile image
RSilver

You can read my earlier post for a better detailed explanation, but I got a rebound on day 9 after finishing Paxlovid and started another round of Paxlovid right away.

ikahan profile image
ikahan

Thank you, I'm trying to get a second dose of paxlovid from my family doc b/c today my rapid test was even more positive than yesterday .

Ileana

Vlaminck profile image
Vlaminck

The stuffy, runny nose sounds more like common cold than Covid to me. There are some 200 viruses around that cause common colds (rhino, corona, some others). I have had a number of stuffy cold-like illnesses in past couple months. Never tested positive for Covid.

However, know quite a number of folks who -- total surprise -- tested positive for Covid. So you may be positive, but still bet your symptoms are from an ordinary cold. And that might be one reason to hesitate trying to treat Covid again.

This is all assuming you are both handling the illnesses okay, nothing dire.

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