A petition has been created to ask the UK government to fund Evusheld for blood cancer patients and other vulnerable groups. On the face of it, a worthwhile idea - if the mods know more about this, please add comments!
For anyone interested in signing, here is a link:
petition.parliament.uk/peti...
Here is a comment from the person who set up the petition:
repetition.me/611884-fund-e...
and here is more information from the BMJ:
Hello,
There is already a link posted from the elusive Bartlet. 🙄
Colette
Yes, my mistake - didn't see that - maybe the mods can or already have merged....
Not necessary to merge on this occasion scarletnoir as your post contains additional important information. Doesn’t really matter how people access the petition.
Newdawn
No worries and yet another example of how the posts now don’t stand out the way they used to, I find they seem to merge together.
How is my namesake.
Colette
Had a lovely lunch with our Colette today - raclette (molten cheese) with potatoes - not fancy, but delicious! She is as always working hard at the vets, but we had a superb and wide-ranging discussion to set the world to rights... easier in a 1:1 situation. (Madame was kindly running my mother to chapel...)
Hope you are doing OK!
Glad you had a lovely lunch, and perfect now the weather has changed and sadly is cold again. How I wish your lunch conversation could put the world to rights.
Thank you I am fine. Always the odd ache and wonder if they are all CLL related. Sadly, as I am sure for many of us being at home more makes us internalise on every problem.
Colette
I don't remember your exact circumstances - we live in a small town, so can walk the dog along the beach or in the woods every day... I went for my weekly bike ride yesterday (20km or so - enough at my age!) in a quiet valley where there are plenty of lambs ATM. So I get out a fair amount - just not to shops, restaurants or the cinema, for example.
You are lucky. I live in a busy part of south London with very high infection rates. I am near Clapham Common but that always seems to be packed with runners, cyclists and dog walkers, so local streets are often quieter.Like you I haven’t been to a cinema or restaurants and only to my neighbours a couple of times. Sadly the excitement of the week is probably a hospital appointment or zoom meetings. I am afraid I can’t see anything changing in the near future.
Enjoy your cycling.
Colette
Hi Colette - just catching up - I saw your post in another thread. It must be very difficult in large cities, especially as you have to use public transport... here in Wales, the requirement for mask wearing in shops has just ended, so my wife is 'on the nerves' now as none of the assistants in M&S wore masks yesterday (about half the shoppers wore them). I'm lucky to have her to do the shopping...
Another problem is several of my friends have recently recovered from Covid and it was nothing more than a sore throat and a couple of days in bed. Even though the figures are at their highest people are just excepting it and carrying on normally. I am trying to do a bit, but with a good mask.
😷
Colette
Yes, it seems to be running riot through the population at large - my mother (99) has a cleaner, currently 'off' with COVID; one daughter has had several colleagues infected, most recently on Sunday - she is super careful, wears a double mask - but who knows? I only really 'contact' 5 close family members indoors - and even then, they wear masks if in any doubt... but I don't really know what degree of caution is needed... I've had 4 jabs, but no idea how effective they were or how many antibodies I have.
Would have liked to see a film this week, but at 3h indoors with quite a few other people? Well, no. Far too careful/chicken for that (delete according to views!)
It’s just so difficult and my cleaner also caught Covid so I stayed out last time she was here and she is now in Brazil on holiday so that will be another morning I will stay out of the way.Two of my friends that succumbed recently did spend a week at a film festival in Spain so that was almost inevitable.
I think I will be unable to have a normal conversation anymore.
But one day 🤞and vaccine number 5 is booked for tomorrow.
Colette
Good news about the vaccine... because I was never picked up as vulnerable, I won't be able to have that for a few months, as the fourth was too recent! I am due a 6-month checkup next week, but will only get a letter (a 'phone chat would have been nice...), so I wrote to the consultant to ask if there was any way my NHS notes could be changed to indicate that I should get antivirals if I catch COVID... am awaiting a reply. ATM, the advice is to 'phone 111' - and argue your case, it seems - but the experience of others on this forum suggests that it is a hit-and-miss process.
NHS say after testing positive 119 should contact you within 24 hours. If not contact GP, 111, clinician. I have discussed with my GP and they said they would use ERS ( electronic referral system ) to find nearest treatment, and I also know where my nearest CMDU is. I seem organised but if I am unlucky I might be a sobbing wreck ! Hope not.
One of the cancer charities, think perhaps CLL Support newsletter mention the SNOMED numbers that should be on your file, but not sure if Wales is the same. I think your consultant needs to write to your GP to update your records.
Colette
Thanks, Colette. I have little faith in the GP surgery's admin or paperwork... let's hope the consultant is better at it and sends them a letter!
Signed Chrisx
Signed and confirmed, Terry
Signed and forward ed to friends. Also wrote to my MP about it.
2518 signatures a moment ago, long way to the 10k needed to generate a response!I’ve copied the link to family, friends and other random people in my address book who i’m sure will oblige!
Shooey
Still only 8,366 signatures on this petition as of 19 April. Gov won't even notice it below 10,000. Spread the word!
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