Enlarged spleen

[Lesley3]

Hi everyone , I think I must have had a feeling something was wrong when I sent best wishes to everyone yesterday. My husband is in A & E at this moment and has been told his enlarged spleen is causing the pain he is experiencing. I know this happens but it is still frightening watching somebody in pain. Has anyone had to endure this pain till treatment starts or will they give him something to cope with it. Treatment is now going to be very soon I think . Best wishes everyone.

[Fran57]

Hi Lesley.I’m sorry I don’t have the answer to your question… I know somebody else will be able to help.

I just wanted to send my heartfelt support to you both at the moment.

Please keep us updated.

Take care of yourself too.

Fran 🤗

[lankisterguy Volunteer]

Hi Lesley3,-

Most of the CLL expert doctors I have heard describe their logic / thought process for starting treatment, will react to patients experiencing pain that affects daily life, and move up the time table to start treatment. You may want to contact his Haematology consultant and advise them of the issue, and then book an appointment to get the consultant to consider treatment soon.

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You may find more information in the box on this page labeled:

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This pinned post has videos of several USA CLL experts describing how they determine when to start treatment. Enlarged nodes &/or spleen, is mentioned - one doctor even calls the spleen a big lymph node.

healthunlocked.com/cllsuppo...

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Len

[Lesley3 in reply to lankisterguy]

Thank you for that info. We knew treatment was coming soon but the consultant said Michael could wait a little longer if he wanted to- I think this painful episode may have convinced him that the treatment should start soon. Best wishes to you

[McBuster]

I had horrible pain on my left side. My numbers were not that bad, so my doctor sent me for other tests to rule out other causes. The CT scan found the enlarged spleen. They gave nothing for the pain, just recommended Tylenol (which didn’t help). I started treatment within a month (O + V) and it the pain was cut in half after the first treatment and within weeks, it was gone. Best of luck.

[Lesley3 in reply to McBuster]

Thank you for replying. Sounds very similar to my husbands situation. We’re soon to start with V treatment. Michael was also tested for a heart attack ( thankfully no). Best wishes to you .

[W00dfin]

Thinking of you 🙂

[Lesley3 in reply to W00dfin]

Thank you .

[janvog]

I had enlarged spleen and the hematologist of the cancer clinic started me on Imbruvica and after one month' my spleen had returned to normal dimension.