Monoclonal infusions post covid.: Hi all, has... - CLL Support

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Monoclonal infusions post covid.

Vindicatrix profile image
7 Replies

Hi all, has anyone got an update on 'Monoclonal Infusions' Post Covid relating to CLL sufferers, in the UK.

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Vindicatrix profile image
Vindicatrix
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7 Replies
blowinginthewind profile image
blowinginthewind

I have medication review with GP last week, and I asked him. He said that doesn't expect to be prescribing them, but he will help me find who does if I have contact or test +ve. I have been avoiding contacting hospital because I suspect they are being contracted very often. Leukaemia Care are doing an informational webinar in a couple of weeks - details will be on the website.

JigFettler profile image
JigFettlerVolunteer in reply to blowinginthewind

I have had further conversations with local hosp medic, equally in the dark. This is a tad bothersome.

Jig

blowinginthewind profile image
blowinginthewind in reply to JigFettler

It is indeed a tad bothersome. So is the fact that no-one seems to know much about the Covid booster jab, Gp hasn't been told anything.

JigFettler profile image
JigFettlerVolunteer in reply to blowinginthewind

My GP does not know, nor our ITU Dr neighbour, wife's nephew is an ITU Doc in London - have texted him!!! Jig

JigFettler profile image
JigFettlerVolunteer

I asked my Haem Team (UK) 2 days ago about this.

They did not know, cos, it was suggested, they don't look after Covid infections.

That brings up another issue, if we are hospitalised for Covid, we will have medics caring for us, know less about CLL than we do!

So I don't know what's occurring.

Jig

Elliot43 profile image
Elliot43

Worrying all round

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