Vitamins and supplements

[210savannah]

Any advice or cautions on using these vitamins and supplements?

[lankisterguy Volunteer]

Hi 210 savannah,

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Here is a link to a Pinned Post that has extensive valuable replies and linkshealthunlocked.com/cllsuppo...

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The most important point is don't just add some random amount of vitamin supplements, get your PCP or Hem/Onc to test you for Iron & Ferritin, Vitamin D3 ( Cholecalciferol, 25-hydroxyvitamin D ), Vitamin B 12 since the correct amount to supplement may be drastically different than non CLL people.

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Note that Vitamin C is NOT on the list, since large doses may actually stimulate CLL cell growth.

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Also to see other similar discussions, look for the box on this page labeled: Related Posts

*Vitamins and Supplements healthunlocked.com/cllsuppo...

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*$2.4 billion later, studies show vitamins and supplements have no value healthunlocked.com/cllsuppo...

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Len

[AussieNeil Partner Founder Admin]

There are so many of these advices. They tend to persist on, in some cases way after good evidence from randomised clinical trials shows little to no benefit.

You haven't provided me with the source of that specific recommendation and I haven't found it via an internet search. However, this article from Harvard University covers a fair bit of the specific advice you've shared:

health.harvard.edu/blog/do-...

At least the advice you asked about encourages mask wearing, though recent evidence proves mask wearing does protect you. The introduction of mandatory mask wearing ended Victoria's 111 day lockdown last year, saving thousands of lives.

With respect to vitamins and supplements, this BBC article Vitamin D: The truth about an alleged Covid ‘cover-up’ is relevant:

bbc.com/news/health-5618092...

Per the section(with my emphasis) What's the harm?

When the findings fit in with people's world views - for example that "natural things can't harm you", Prof Sander Van der Linden, a social psychologist at the University of Cambridge explained - this makes them more likely to be shared.

While the online worlds of natural health and alternative medicine, and of people who are ideologically anti-vaccination are distinct, they can overlap.

Anti-vax accounts are "densely connected to other topics - religion, herbal and alternative medicine, the natural community," says Prof Van der Linden.

This means they can share topics that will intersect with people in those communities' interests and spread a message that, for example, "you don't need a vaccine, you can just take vitamin D," without it being overtly flagged to someone that the message is anti-vax when it appears on their feed, he explains.

Vitamin D is relatively safe (although few medical interventions are entirely risk-free, especially at high doses) so it may not appear to be the most harmful of misinformation.

The danger, Prof Van der Linden explains, is when people suggest the supplement is a miracle cure and should be substituted for vaccines, masks and social distancing.

Neil