Venetoclax

[Chinhdo]

When add venetoclax to Ibrutinib in Cll Treatment

[lankisterguy Volunteer]

Hi Chinhdo,-

I am not certain I understand your question, but I believe there were clinical trials where Venetoclax was added before and after Ibrutinib, but don't recall seeing any results.

-

This posting may be the most useful.

healthunlocked.com/cllsuppo....

-

If you copy this string and insert it into a standard Google search - you will get a list of links that may answer your question:

-

site:healthunlocked.com cll support/ibrutinib+venetoclax

-

I do believe that people that were able to get the two drugs at the same time, often had no detectable CLL in their blood within one year. However in most countries the combination is not officially approved or covered by medical insurance. In the USA the cost of both drugs for one year would exceed $250,000, so cost would be a significant obstacle.

-

Len

[Chinhdo in reply to lankisterguy]

Thanks. Very useful...

[Smith123456]

i added venetoclax to imbruvica. i;m in usa and not on a trial, i also had 6 months of gazyva

[Justasheet1 in reply to Smith123456]

Smitty,

I still don’t know how you pulled that one off. My insurance questions payment for a bandaid.

Jeff

[Smith123456 in reply to Justasheet1]

i never said i never paid any co-pays. my medicare advantage insurance has a clause that says if you got a drug in the last 12 months they must cover it in the next calendar year. i always make sure i get each drug at least twice in a year from the insurance-even though i currently get both free from the manufacturers.

the reason i do that is to try to avoid an autoreject by computer that a human being would have to be involved in.

when i first started the venclexta both it an the imbruvica did not need approvals to begin with. even though i was getting imbruvica and then venclexta free i still spend some every year on my insurance and cross my fingers it will still work.

so far this calendar year i have filled each one once and they have gone thru.

in 2020 when i actually got all 3 drugs imbruvica/venclexta /gazyva i got what would have been about 26,000 in co-pays down to 8,000.

if you need to fend for yourself you need to work the rules on your own behalf.

i also get 8.000 a year from the leukemi/lymphoma society

[Justasheet1 in reply to Smith123456]

Good advice but I have private insurance still and am naive about Medicare. I may need to send you PM one day for other strategies as I get closer. Thanks!

[Smith123456 in reply to Justasheet1]

read the small print on your policies

[Justasheet1 in reply to Smith123456]

You need special glasses to read the small print and the glasses are considered elective and not covered. 😂

Just kidding.

Jeff

[lankisterguy Volunteer]

Hi Chinhdo, -

Please see this posting healthunlocked.com/cllsuppo...

by Jm954

-

Len

[Chinhdo in reply to lankisterguy]

Great , quite encouraging...