Taking vitamin d

[mickyboy63]

Hi.

Im on watch and wait and just had a gov letter offering me vitamin d tablets for 4 months.can i have these.

Thanks Mick

[AussieNeil Partner Administrator]

Hi Nick,

See the previous discussion on this topic here: healthunlocked.com/cllsuppo...

Neil

[mickyboy63 in reply to AussieNeil]

Thank you.

[Pageboy]

I got the same letter, thought I’d click through and get the Vit D for the family if not for me. Cancer patients are on the ‘not suitable’ list.

[mickyboy63 in reply to Pageboy]

Just spoken to my gp and he said go for it .its not an issue for me.im not on any treatment for CLL just anti biotics for immune system. I had skin cancer two years ago and now keep out off the sun,so vitamin D could be a good thing.

[Pageboy in reply to mickyboy63]

That’s good - hopefully they’ll send it to you.

[michaeledward in reply to Pageboy]

re "cancer patients are on the 'not suitable' list", I have CLL and am taking Ibrutinib. My primary care doctor issued me a prescription for 1000 IU of Vitamin D3. This is the first I've heard of vitamin D3 being a problem for CLL patients undergoing treatment.

[Sepsur in reply to michaeledward]

Same here

[Pageboy in reply to michaeledward]

Hi Mteaney, I don’t have knowledge one or another about cancer patients taking Vit D. I was only trying to share that when I tried to register for the Vit D to be ‘given’ out by the NHS, cancer was on the exempt list as some cancers react adversely to Vit D. I guess they’re lumping it all together for convenience. I do take Vit D but that’s off my own back. I’ve never asked my doctor. Maybe I should!

[Sepsur in reply to Pageboy]

Not suitable for Vit D or life?

I’ve been taking it for 4yrs before & after starting treatment on the encouragement of my team at The Christie too.

[Pageboy in reply to Sepsur]

Hi Sepsur, all I was sharing was cancer as a collective was on the exempt list for the NHS Vit D list when I tried to register for it. Probably because it’s risky for some cancers. I have no knowledge either way with regards to CLL specifically but do take Vit D myself.