Question

[Boccejoe]

Hi Everyone -,I have had CLL since January 2014 and have been on watch and wait since that time. My WBL now is 69. Recently I had a chest xray and they found a spot on my right lung so I had a CT Scan this week and anxiously waiting for the results. Also my glands in my neck were swollen and I am having terrible headaches and my ears are plugging. Can anyone else relate to this. Very scared. Jo Ann

[GMa27]

Hopefully it's just some nodes acting up. Are you waiting for a call or have an appt for results? Good luck! 🙏💕

[Boccejoe in reply to GMa27]

Waiting for a call - have been living on tylenol. Thanks for the reply.

[Wroxham]

Hi Jo Ann

Please try your hardest to relax a little bit and calm down. We all know it can be a very worrying time pre results of scans, blood tests etc.

Stress and worry could be contributing to your headaches and pain.

How long do you have to wait for your results?

Unfortunately these things do take time.

We all understand how you feel a lot of

Us have been in your situation.

Please let us know how your results are.

Talk to your GP about how you feel maybe he/she can help.

My best wishes are sent to you.

Sue

[Boccejoe in reply to Wroxham]

Thanks for your reply. I had to call my doctor for the results of my CT Scan of chest because he had not called me. Sending me to a Pulmonary Doctor to do a biopsy on the spot on my chest - called it a cyst but said since I have leukemia it could be malignant. My headaches continue and he really is not addressing that issue. I have called my oncologist as thats who I should have called in the first place. He can't see me until June 30th but I am going to call on Monday to see if I can get in sooner as I can not handle my head pounding and now my hands are getting numb. Scares me that I might have something going on in my brain with all these different symptoms.

[Wroxham in reply to Boccejoe]

I hope you get on well with your oncologist today and that he can help you.

Best wishes are sent.

Sue

[Boccejoe in reply to Wroxham]

I called Oncologist today moved me up to June 18th. better than June 30th. Today I am light-headed - seems like every day there is something new going on. JoAnn

[Ellieoak]

I had something similar the spot on my left lung turned out to be nothing. The sinus problem my had I saw and my ear nose and throat doctor he did a surgery on my nose and then sent me to an allergist and she put me on IV I G. I still take IV I G but have not had a problem with my sinuses. That was 10yrs. Ago.

[Nanno77]

I also developed a spot on my right lung...showed up on a Pet scan. My onc wanted a biopsy , but when I went in for the biopsy, the surgeon missed it and so now we're just watching it. It hasn't changed in over a year and I have no adverse symptoms. Sometimes I need to. tell myself to be patient and try not to stress.(easier said than done).

Best of luck😷😉