Checkup: Diagnosed in September 2017. My first... - CLL Support

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Checkup

shornoff profile image
2 Replies

Diagnosed in September 2017. My first 6 monthly review tomorrow. Before that they were 3 monthly.

Had blood taken 2 weeks ago and the review will be with a doctor by telephone.

Hoping the doc can email, text or even post me my results. The NHS seems to be terrible at digital stuff.

What questions should I ask?

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shornoff profile image
shornoff
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2 Replies
JigFettler profile image
JigFettlerVolunteer

Hi!

Today - I guess your appt was yesterday!

Essentially WnW monitors you for:

Bloods, Hb Platelets and Lymphocyte counts.

Weight.

Lumps Lymphnodes spleen

Fatigue level

Infection levels.

The decision to treat is never a hard and fast issue. More often its what to treat with that gets us thinking!

How did you get on?

Jig

shornoff profile image
shornoff in reply toJigFettler

Because of the pandemic my appointment was by telephone and was 30 minutes early. Usually I go for an appointment, have to pay £4 for parking and wait for 2 hours.

Dr. asked if I was having night sweats, lost weight, had fatigue. I said no. She told me that my bloods had hardly changed. She asked if I was shielding at home and could I get groceries etc? I told her I could.

I asked if she could email me my results. She said she would post me a copy. Post??? How much does that cost?

Whole conversation lasted 3 minutes and I never really got a chance to ask only 1 of my 6 questions.

She is a lovely Dr. I have met her but we both found the telephone conversation difficult but it was a very good use of a Dr's time. Just needs a little work.

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