Blood Thinners: Hi everyone, I’m not in... - CLL Support

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Blood Thinners

Rhythmauthor1 profile image
10 Replies

Hi everyone, I’m not in treatment yet, as my WBC is 33, lymph’s 87, minor lymph nodes, platelets normal range, nevertheless I am concerned as I understand there are treatment restrictions if you are on blood thinners. What treatment options currently exist for CLL if you are on blood thinners? I am currently on blood thinners. Thank you.

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Rhythmauthor1 profile image
Rhythmauthor1
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10 Replies

you might not need any drugs to -prolong clotting time-or your dose might be reduced

cllady01 profile image
cllady01Former Volunteer

Ibrutinib (,BTK Inhibitor) is known for side effect of bleeding and AFIB, so it is important your discussion with your Dr. at time of treatment get clear what your status is in that regard. There are options for treatment but treatment evaluation takes into account your specific markings, other health issues, other medications you take. There is no one list that fits all.

At the time for treatment, you Dr. and you will discuss the possibilities for you.

Newdawn profile image
NewdawnAdministrator

Your WBC is always higher than your absolute lymphocyte count. Is that a percentage for your lymphocytes?

Newdawn

schmitthj007 profile image
schmitthj007

There are many treatment options available with numerous combination. When the time comes you will need to sit down with your oncologist who might refer you to the field prescribing the anticoagulation medication. Frequently this might be a cardiologist since atrial fibrillation is the most common reason to be on anticoagulation medication. CLL treatment for patients who are on anticoagulation medication certainly becomes more complicated with different consultants working closely together to keep you save and sometimes anticoagulation needs to be held if platelets get too low. BTK inhibitors such as ibrutinib and acalabrutinib can both reduce platelets and cause platelet inhibition which makes patients who take anticoagulation medication more prone to bleed. If you have atrial fibrillation apixaban might be the safest medication to take.

Best

Heiko

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Apixaban = Eliquis It is for non valvular A Fib.

I am also on a blood thinner, in my case for valvular A Fib. I would not worry too much about being on a blood thinner. Advances in treatment are very rapid, and one thing obviously being studied, with the next generations related to Ibrutinib, is the bleeding issue.

If your WBC is correct, your ALC would be under 30 (33 x .87). It is likely that you will have a long watch and wait. Is your HGB in range? Do you have other symptoms of concern? I would keep an eye on the advances in treatment - not obsessively, as they are moving very fast, and some things are here today gone, or gone beyond, tomorrow.

Rhythmauthor1 profile image
Rhythmauthor1 in reply to MsLockYourPosts

My Hgb is within a normal range.

Rhythmauthor1 profile image
Rhythmauthor1 in reply to Rhythmauthor1

I have a few slightly enlarged lymph nodes is my biggest symptom right now

Shaheenji profile image
Shaheenji

My dear there are many different types of blood thinners at least five types I know not being a doctor when a cll specialist n Oncologistics must be knowing much more,

Aspirin,,,ibuprofen, ,,all Nsaids,,all of the Statins, ,,warfarines Heparines, ,,others NOAC,known as new Novel anticoagulants,,& many more

We the group members want to know what THINNERS are you using or very best n good is you discuss the thinners with your CLL specialist .God bless you waiting for your kind response Thanks

Rhythmauthor1 profile image
Rhythmauthor1 in reply to Shaheenji

82 mg of aspirin daily and 2.5 Mg amlodopine daily

LynnB1947 profile image
LynnB1947

Almost 6 years on ibrutinib for SLL & doing fine. Also on coumadin.

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