Well 20 steroids a day is going to make sleep interestingly rare. Very poor day at The Christie today. They can’t locate biopsies from last week & bleed around lung will preclude me from trial
Lunch : Well 20 steroids a day is going to make... - CLL Support
So sorry for your news.
Not read your biopsy story, so don’t know your symptom history..
My pleural effusion a year ago proved to be submassive PE.
A close call between senior renal and his junior, but junior won the day in suspecting PE; so, rather than draining fluid with large needle, injections for blood thinning.. the latter is not best where there is a large drainage hole created..
Steroids: I’m guessing those many are spaced at regular intervals through the day? Or is it large doses a few times a day? That was my situation a year ago for a month or three. I did not resist doctor’s instructions/hopes that i gain weight - but i was an odd creature for quite some time and eating for two.
Lots of folk here will be keeping fingers crossed for you. I will be hoping the medics, in spite of this biopsy going missing, make the right decision for your care and treatment.
Stay strong. We are all in this together.
As if by premonition, our charity has organised a body composition & bone density workshop ( wrong word - can’t think at present) in the Spring. We have the professional input & guidance of various specialist NHS staff( voluntarily) because they wish to study us - a guinea pig group of ICU survivors.
Interestingly, we can hire the machines & their operatives cheaper away from the hospital than attending sessions in hospital.
I was already eager to be involved, now it has more significance.
Wow! And I thought that five steroids a day for a week was bad. I couldn't sleep the whole time and then the days after they wore off I was so tired. I feel for you. My nurse back then told my wife to be sure and take advantage of my extra energy and have me do extra chores around the house...LOL
I hope that they get things sorted out for you soon Sepsur. You sure have been through the ringer and I knot that you are ready to get back to reasonable health. Hang in there...
Not a very nice Christmas present 😟Sepsur, as it sounds a really tough time.
Many many years ago my husband as a youngster lived in Wythenshawe. His mother was a cook in the kitchens in the hospital there (and a very good one!). It was built during the war, near to Ringway airport where the no.1 paratroop training school was. They dealt with a lot of burns in those days and also plastic surgery for the burns victims.
Just thought you might be interested during the wee small hours. Could you do some research into a subject you are interested in (Not CLL!), as the Internet is open all night.
Best wishes, hope they get it sorted soon.
PS I worked in medical records in our local hospital, and having turned the whole hospital upside down looking for missing notes, they were discovered propping up a table leg in the consultant's house.
You would think that the pharmaceutical companies could do a better job with the aesthetics presentation to improve appetite.
I am picturing the meds in a shaker in the form of Mrs. Dash's seasoning, or perhaps in a steak sauce, or even a salsa that could be topped over an omelet.
Ooh Grief, even alfalfa pellets have more appeal. I feel the need to Grandma come and cook for you.
Thank goodness for the pie. I hope this passes soon for you and a banquet is served.
Thank you - I must admit the steroids are reducing all the pressure from my nodes & making breathing easier - so my blood 02 saturation has risen from 92 to 97. Better pallor - still massively out of breath descending & ascending small staircase to grab cup of tea. So ‘feeling’ better is artificial kick from steroids - but temporary improvement is welcomed. Slept1/2hr first night but all night last night which also helps.