Multiple calcified granulomata; Go to Port? - CLL Support

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Multiple calcified granulomata; Go to Port?

Butitisme profile image
7 Replies

multiple calcified granulomata.. on x-ray..

am looking to get infusions in near future... bronchitic cold not responding to Rocephin...wondering if to go straight to a port... my veins tend to roll...

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Butitisme profile image
Butitisme
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7 Replies
GMa27 profile image
GMa27

Loved my port. Kept my veins healthy and my hands were free- no bruising. Easy procedure to insert and easy to remove. 💕

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Previous post deleted. Thank you Kim for catching my error! Apologies, Butitisme! Have your doctors determined the cause of your granulomas - bacterial, fungal, or ??? Are the infusions for the infection? It is very important, if the infection is not clearing up, to determine the cause of it so that the right antibiotics or antifungals are used to treat it. Are you also going to get infusions to treat your CLL or get IVIG to boost your immune system?

If you will be getting infusions long term, and your veins are hard to access, a port would be worth discussing with your doctor or infusion nurses. If the infusions are very short term you might be able to have a catheter that is used for more than one day. How many days varies from center to center. Most people I know who decide to go with a port are glad that they did. They usually require monthly flushing, long term. You need to ask about that, and consider how easy or hard it would be to have that done if you keep the port.

Marie-54 profile image
Marie-54

I never regretted getting the port. So convenient and no more fighting with the veins. GO FOR IT.

Newdawn profile image
NewdawnAdministrator

Can you swim with a port inserted?

I’m having serious vein issues for my monthly IVIG so appreciate the dilemma.

The infection risk concerns me too.

Newdawn

noeagaman profile image
noeagaman in reply to Newdawn

I swim with my port all the time Newdawn. My doctor said it's OK.

Chris

Newdawn profile image
NewdawnAdministrator in reply to noeagaman

Thanks Chris 😊

Newdawn

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer in reply to Newdawn

A port is completely under your skin, so there are no issues with bathing, swimming, etc. Given your issues with accessing veins, and the fact that you probably will be getting extra “sticks” because of the trial, it would be worth asking about the pros and cons, in your case, of having one.

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