living with lukimia: hi, Iv been living with cll... - CLL Support

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living with lukimia

bali103
bali103
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hi, Iv been living with cll for one year have had my spleen removed chemo did not work and have been taking ibrutinib for three months and experiencing depression blurred vision some times my heart beats through my chest my head feels like it cut off from the world.but my blood test are showing great improvement with none of the effects of the leukemia

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Hang in there my friend. You have been taking a medicine that will help you in the long run. Do you have a great CLL specialist doctor to tell about the side effects? Don’t be sad. You have friends here to help you get through this. We are here...

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Jm954
Jm954Administrator

Please tell your doctor how you are feeling and about this symptoms which may be side effects.

Most of the ibrutinib side effects reduce over time so as LovecuresCLL says - hang in there and let your doctor help you, this is a great treatment.

Jackie

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Time17

Maybe see if you can change to Venetoclax or add Venetoclax to the combination with Ibrutinib so that your dose of Ibrutinib can be reduced. I certainly agree with the previous advice given-- talk to your specialist as soon as possible. Best wishes.

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