a problem

[techienumber1]

I was diagnosed with CLL about 5 years ago I felt so low at the time I was told I nearly took my own life

but after recieving some welcome news I found out that my last 2 years counts I had normal cell's

at the time of my diagnosis I had bad teeth and after I had these pulled my health started to recover that is when I asked for the symptoms of CLL and found that 1 of these things was weight loss and then found that all the rest of the symtoms

are below

extreme tiredness (fatigue) and/or weakness

swollen lymph nodes (glands)

drenching night sweats

fast and significant weight loss without trying

high temperature (fever) without any other signs of infection

repeated infections (such as colds and flu).

Some people have one or two of the symptoms; others may have all of them.

I have had none of these actually I have gained weight so in fact I believe that I have been wrongly diagnosed

to add at the time I was diagnosed with the problem I was drinking a bin bag full of energy drinks being diagnose I havent tooched one

so in fact these could have given me a wrong diagnosis what do you think !

[PlanetaryKim]

You need a flow cytometry blood test to confirm a CLL diagnosis. If you haven't had one, then you don't really know for sure.

[Hidden]

what tests were run to give you this diagnosis?

[Newdawn Administrator]

Could you give us some idea of your blood results please in particular your WBC and ALC (absolute lymphocyte count, not percentage) over the 2 year period.

In truth I didn’t have significant side effects for the first two years but a flow cytometry blood test had confirmed my CLL. It sounds like you’ve made some excellent health improvements since your diagnosis and this may have delayed any further progress of the condition. However, only further testing as Kim has said will confirm whether a misdiagnosis was made.

It could be that you have an incredibly indolent form of CLL but it’s probably psychologically unwise to rely too heavily on the idea of a misdiagnosis.

Newdawn

[Ptown]

Hello Technienumber1,

Well, it goes without saying that we all hope that there was a mistake in your diagnosis, but it is imperative that you get this looked into. I concur with Newdawn and Planetary Kim that getting a yes or no answer as to your CLL status will give you, and thus your family, peace of mind. I had no idea I had CLL and was not ill, but my numbers have continued to slowly climb and I lead a very careful life. Best wishes - let us know how it turns out, okay? Best, Carolyn

[Sonjaizumi52]

I really hope you have been wrongly diagnosed and it is great that you are doing well now Why not keep away from doctors for a while and believe that you are 100% well. It will do wonders for you; Why not wait a while and get another blood test in say 6 months (as long as you don't have a virus or infection at the time). It's great that you are doing well. I'm so happy for you