Erosive lichen planus and CLL: Hi I'm new here... - CLL Support

CLL Support

22,532 members38,709 posts

Erosive lichen planus and CLL

Gizmo60 profile image
2 Replies

Hi I'm new here and newly diagnosed. In searching the cause of my rash and ulcers in mouth and throat we discovered the CLL. I'm watch and wait. I'm currently on prednisone for the ELP but very worried what this will do to the CLL. I'm also diabetic so diet is very low carb no grains since first of the year no sugar no processed foods no spices pretty much limited. Does anyone else have similar issues happening?

Written by
Gizmo60 profile image
Gizmo60
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Ellieoak profile image
Ellieoak

The prednisone will not hurt your CLL. You will probably have to take it for different things though out your life time. I myself wouldn’t give up on things in my diet. If your are a severe diabetic yes but if you are not small amounts of spices, grains and sugar won’t hurt. It won’t make your CLL better. Eat right, exercise, and enjoy your family and friends. Anna

Robws profile image
Robws in reply to Ellieoak

Yes I agree..eating differently, I finding the fatigue is less frequent & I have more energy...if I eat simply & cleanly..kind of a keto diet- shake in the morn with strawberrIt’s, peanut butter, yogurt, blueberries, coconut oil (teaspoon) organic frozen spinach, peaches or pineapple, vegan protein powder, dash of cinnamon curcumin & unsweetened coconut milk w ice— then coffe or tea..not hungry for at least 4-6 hrs...& avocados are your friends.& I’ve always believed that the 75-80% diet rule is correct- you think, & eat, in terms of 75-80% of a meal - you’d make & eat that munch...

in sum, less carbs, more fat, clean (organic, grass fed etc.) protein...& if u got a farmers market near you use it.. Rob S

You may also like...

CLL and the NHS in the UK

I'm hoping the UK members of the CLL family can share their experiences with me, and I apologize in...

Hip replacement and cll

double hip replacement, I'm wondering if there there is any relationship with cll? I've been doing...

CLL

symptoms do you guys get for CLL? I'm afraid I might be diagnosed with CLL and I just wanted to...

Newly diagnosed Cll B cell

diagnosed with Cll B cell I have deletion of the Tp53 and 17p13.1 I am very confused very uncertain...

CLL Medications and Corona Virus

Power host and three very talented CLL Specialists. It had to do with the latest CLL Medications...