I’d like to hear from those of you who temporarily lowered the dosage of Imbrutinib/Imbruvica. Please tell me if that made your side effects stop. I’m taking 420mg daily, going on vacation in two weeks and have painful tongue sores and pain swallowing. My oncologist prescribed a mouthwash (the steroid Dexamethasone)that I just got yesterday and also is calling in a lower dose of Imbrutinib. Don’t know the new dose yet.
I’d really like to stop taking it completely for the week before and the week of the trip, but of course wouldn’t do that without his approval. All my markers have improved since going on Imbrutinib in December after nine years of w and w. My WBC count has decreased from 230,000 to 98,000. Every other marker is in normal range. Thanks.