Weight loss: Has anyone lost weight on... - CLL Support

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Weight loss

Deweydog profile image
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Has anyone lost weight on venetoclax?

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Deweydog profile image
Deweydog
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thb4747 profile image
thb4747

Hi there. Not sure if this will work or not but here’s a very recent thread n the same topic:

healthunlocked.com/cllsuppo...

Hoffy profile image
Hoffy

Come to think of it when I was on V it was hard for me to gain weight. Now that I’m off I am gaining weight. So it appears that V can help with weight loss.

I know of other people that had lymph nodes in their stomach shrink and as a result they had a bigger stomach so they gained a bunch of weight .

For me gaining a bit of weight is a good sign and that it means by CLL is not active hopefully.

Be well,

Hoffy

profrich profile image
profrich

Yes, I have gone from 166 to 163 (I am a 5 10 male), and I can't seem to get the pounds back. I have been on venetoclex 4 weeks plus 2 400 mg dosages.

My alc is under 2000, but my hemoglobin is only around 11 and worse than it was two weeks ago.

How about you?

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