Blood test

[Ldob63]

Hi, my name is Lori. I've had CLL for 16 years now. I just finished a ten year trial of ABT-263. I recently progressed and had to come off the trial. Venetoclax was the treatment that developed out of my trial. seems like the CLL is coming back quite fast. I can't find the info I had concerning blood work. Is there anywhere here that I can find blood tests explained? I had the chart from CLL Topic and I really liked hers.

Thanks, Lori

[AussieNeil Partner Administrator]

Hi Lori, and welcome to our community. You are probably aware that Chaya's website has been closed, but the spreadsheet template published there, which enables you to chart your blood test results has been updated. There are two versions per this pinned post: healthunlocked.com/cllsuppo...

This CLL Support page lists the common blood tests and their purpose, plus there is more information in the spreadsheet templates.

cllsupport.org.uk/cll-sll/s...

Finally Dr Susan Leclair in her videos on Patient Power does a great job of describing the different blood tests in easy to understand terms.

healthunlocked.com/cllsuppo...

I hope you find a replacement therapy that gives you at least as good a remission as you got from ABT-263. I understand that you are the last remaining patient on that precursor trial to the development of ABT-199, now known as Venetoclax/Venclexa.

Neil

[Panz in reply to AussieNeil]

Thank you for sharing there sites....my head is spinning! But I will be digging my way thru them. The only way omeat an 🐘 is just one bite at a time!!!

[Panz]

This a great site and we truly welcome you and what you bring to all of us...we are a very caring, loving and supportive community. The plus side is we have some very intelligent hard working members that keep us all enlightened. I wish you the best on getting things sorted out and getting the best solution for you! I have had CLL for 30+ years with 27 years of treatment off and on with the old time Leukeran and now as of January 5th of this year am on Imbruvica 420mgs and doing super with all areas of concern beginning to settle out....I am so very humble and very excited....life is great! ☘️🙏💕😍

[Yvbb]

Thank you, Lori, for paving the way for future medication and development. 10 years in a trial...wow. 💪🏻👨🏼‍🎤. I hope you will find another study that gives you good quality of life. You’ll be in my thoughts.

Yvonne