CLL Support Association
10,576 members16,429 posts

Needing prayers - heading to emergency room with 101.6 neutropenic fever

Cll specialist called and told me to urgently go to hospital for Antibiotics in case of bacteria infection .... this is my first fever w cll and neutropenia- said I will be there are least 72 hrs 👎. There goes my beach vacation:( ugh so annoying this cancer !!!!!!

42 Replies
oldestnewest

Alissa I have just seen this before I headed off to bed! I am so sorry for you! I have spent many an hour in what we call A & E and it's no fun. Thinking of you and sending you lots and lots of prayers.

Colette xxxxx

5 likes
Reply

Good luck Luckyliss! I have been in same situation with CLL.

2 likes
Reply

So sorry to hear this, Luckyliss.

Thinking of you,

with hugs and prayers,

Paula x

4 likes
Reply

I’m gonna start calling you “Un-Luckyliss”. Kidding.

Feel better. Sounds like your Doc is a good one.

🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

Jeff

1 like
Reply

Liss,

I am so sorry to hear this. I can honestly tell you if my choice was 72 hours in the hospital or missing a beach vacation...if I was physically able to stand and walk out of the hospital I will be on my beach vacation...can spend a few days in the hospital when I get back....if things are worse, well I will be in the hospital won't I :)

Please take care of yourself Liss.

Scott

Reply

Scott

Whilst your comment may have been tongue in cheek because there really is no choice, it’s worth just pointing out that nuetropenic sepsis can be a killer if not treated!

72 hours or more in hospital against never recovering is a no brainer!

4 likes
Reply

Cammie

It was about half and half toungue in cheek ....mostly cause I would rather be anywhere other than a hospital. And Beach vacation or Hospital....yeah, it would have to be something really serious...like I would not be coming back from that beach vacation to overcome my horror of hospitals ...

Liss,

don't listen to me...stay at the hospital.....everyone knows I don't understand or know anything....cause I never did :)

2 likes
Reply

Sorry to hear this. That temperature is higher than required to visit ER/A&E - -but the staff have to understand our susceptibility with CLL.

Now, Luckyliss, you take care - I trust you got in good and quick? That holiday can be another time! Hopefully this will pass quickly, with antibiotics, and you will be home before you know it. Drink plenty of fluids - or maybe they put you on IV ABX with saline saving you some drinking?

Thinking of you.

1 like
Reply

Good wishes coming your way for a quick and speedy recovery.

1 like
Reply

Thinking of you Liss, there are many positive thoughts and prayers coming your way right now - please take care of you!

Debbie xxx

3 likes
Reply

Do let us know how you are doing once you are settled into the Hotel Hospital. Too bad about the beach vacation but the beach will be there when your neutrophils rise to a safer level, and any danger for you has passed.

Make sure you are an advocate for your own safety - people should wash their hands before coming into your room or touching you or your iv, etc. And hopefully they will be able to put you in an isolation room or a room by yourself at least.

Perhaps a family member can put up a poster of a beach scene if allowed to give you something to look forward to.

All the best,

Sandy Beaches

ps I will go and personally build you a sand castle on my favourite beach........

2 likes
Reply

Agh! Always something! Good that you checked your temp. And good that your doctor is being proactive! As Sandy Beaches said, don't be afraid to be an advocate for your safety. If you don't actually see staff wash their hands, put on gloves, tuck in scarves or ties (sometinig that was called to my attention as important ) say something!

Once you are settled, if you need company on line, or on the phone, let me know. I will check in periodically for updates and / or PMs (chats).

Your west coast night person connection!

6 likes
Reply

Prayers coming your way. Stay strong and by the way it’s raining down here!

Reply

Keep healthy and positive. In my thoughts and prayers

UK Sparky

1 like
Reply

Sending you every good thought.

1 like
Reply

Wishing you the very best.

Have courage.

Jig.

2 likes
Reply

Hope the fever is under control and you are getting some sleep - hard to do in a hospital!

2 likes
Reply

Thinking of you during this traumatic time x

1 like
Reply

Take it in your stride 🙏. You surely going to get over this tiny storm in the tea cup.

Keep well and stay safe and strong 💪

Reply

Thoughts and prayers coming your way! Please keep us informed of what’s going on.

Becky

1 like
Reply

So sorry to hear this Luckyliss. You are doing the right thing. My thoughts and prayers are with you. Let us know how you go.

Take care

Ann

1 like
Reply

Hoping you are doing OK and will be feeling better soon. ❤️

Reply

BIG HUG and hope you feel better soon

Susiecarer

Reply

Sending healing prayers.

Pam

Reply

How are you this morning Alissa?

Reply

You are in the right place and getting the treatment you need. this is a perfect reminder that even not in treatment, we should be taking our temperature several times a day when there is even a small chance that we could be neutropenic.

Good Luck Luckyliss !

Reply

Praying for you.

Reply

Sending prayers

1 like
Reply

You are In my thoughts, I know how you feel. In October 2016 my neutrophils were 0 and platelets were 6 I was admitted to hospital and had to cancel a cruise. We know our health comes first but can't help feeling disappointed at missing our holiday. Please keep us updated.

Best wishes

Reply

Missed my winter in Florida this year. Bummer.....but on hindsight it was probably a blessing because Flu and other illnesses seemed to be rampant in Florida this past season. Lots of our friends were very ill. I feel that I missed a bullet :-)

1 like
Reply

Feel better soon! You got this! We are all here rooting for you!

1 like
Reply

Prayers and hugs coming your way. The beach will be there when you are better.

Paula

1 like
Reply

I’m so sorry you are enduring so much, Luckyliss! My prayer tonight will be a bit longer for you. Sending you a grizzly bear hug from Western Canada ❤️.

Ash

1 like
Reply

We are all in your corner and wishing you a speedy recovery!

Hope that beach holiday will be rescheduled when you are well again and you will enjoy it even more than you anticipated!!

Reply

Chin up !! You will get through this. Healing prayers sent your way.

Reply

My husband and I had to cancel two vacations because of his neutropenia.....hate that cancer....I know you are disappointed, but take care and know you are in our thoughts jersey girl....

Reply

I hope you can read these messages and feel the concern and care for your, Luckyliss. I'm hoping those antibiotics are doing what they're supposed to. Damn CLL.

Reply

How are you today? 💕

1 like
Reply

Just got home !!!! Hooray xoxo

4 likes
Reply

Wow! Yay....you might have beat the record of days in hospital being neutropenic. Nice to be in your own bed! 💕

2 likes
Reply

You certainly are LUCKY!

Welcome home, take care.

Joel

Reply

Lucky... I hope this finds you feeling better and soon being discharged from hospital. You were very wise to call your Dr. Feel better!

Joel

1 like
Reply

You may also like...