Green Tea and diet changes: I’ve seen different... - CLL Support

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Green Tea and diet changes

Jhoover1014 profile image
12 Replies

I’ve seen different reports on using a green tea supplement. Have any of you done that and what have your results been with it? Also have you made any changes to diets or lifestyles and seen improvement?

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Jhoover1014 profile image
Jhoover1014
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12 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

Daily brisk walks... made a huge diffrence for me... Over the counter green tea extracts are not recommended, by the Mayo doctor that did the study, because nobody knows whats in it or the dose.

Chinese and Indian green teas are sprayed with a number of banned pedticides, so who knows what you are getting... if you try this get your liver tested quarterly...

Dose is important, so is how you take it... EGCG is a mild chemotherpy... as well.

~chris

Jhoover1014 profile image
Jhoover1014 in reply to Cllcanada

Thanks for your insight! Greatly appreciated!

TimHB profile image
TimHB

I understand the confusion. I was first told by my HemOnc to drink lots of green tea. But now that I'm on Ibrutinib, green tea is absolutely forbidden along with grapefruit and vitamin E.

BluMts profile image
BluMts in reply to TimHB

Could we have more details about avoiding vitamin E when on Ibrutinib? Would be great as is first time I've heard this and anyone who takes a multivitamin is getting Vit E supplement. Would be great to know for what reason you were told to avoid E.??

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply to BluMts

Section 4:4 of the Monograph for Imbruvica (ibrutinib). It cause blood thinning and can cause bleeding on Imbruvica (ibrutinib), discuss it with your doctor

Here

ema.europa.eu/docs/en_GB/do...

BluMts profile image
BluMts in reply to Cllcanada

Thank you so much, Cllcanada.

kathymac52 profile image
kathymac52 in reply to Cllcanada

Did you hear about not drinking green tea on Ibrutinib? We did not get that in any of our materials. Just an occasional cup of tea?

kathymac52 profile image
kathymac52

My husband took Green tea supplements on weight and watch, and it really did nothing to stop the progression of CLL. He stopped after a year. Eat as healthy as you can, and exercise. Keep strong in body and mind.....my husband became severely neutropenic for 5 months, and I swear that because he was as healthy as he could be, he avoided infection.

alexmcg48 profile image
alexmcg48

I've been taking 750mg green tea supplement & drinking around 4 cups of green tea daily for 3 years or so. Whether it's doing me any good is difficult to say & I do walk 40mins fairly briskly daily as well, but so far my count is going up slowly & generally my other bloods are good, so whilst this trend continues I'm going to keep doing what I'm doing & hope I can put off treatment for many, many years.

gemit2000 profile image
gemit2000

Suggest you do a search on this site as topic has been discussed many times concerning questions of 'if', 'how much', 'what type', & 'what brand' & 'how to make it more bioavailable'.

I take NOW green tea capsules 4x day plus drink hot and iced green tea every day to get about 1000 mg or 25% of what the Mayo Clinic's clinical trial was dosing (I can never remember that for sure.. but if you search the topic it will be there).

Hoffy profile image
Hoffy

The book N of 1 is good and he is successful ,

Be well,

Hoffy

Philipoc profile image
Philipoc

Jh

Just recently diagnosed. So my expertise is a little weak.

I’ll just give you my take so far on green tea.

I’ve had 3 blood draws and numbers were to be expected 26K WBC. The third blood drawn that count reduced to 24K and the lymph diff also reduced. The only thing different I did was take a green tea supplement. 125mg green tea supplement from Whole Foods. I understand that typos number moves up and down and 2K isn’t anything really to write home about, but I’m pleased it’s not trending upwards. It could indeed be the supplement that keeps it at bay for now. The dose is low as you can see. Hope this helps

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