About sll

[Ironj]

Your near me so I wanted to know if we could communicate about sll/cll I’ve been just told I have it and am anxious.

[AussieNeil Administrator]

Use this site's Private Messaging facility to share addresses/contact details: support.healthunlocked.com/...

[Ironj in reply to AussieNeil]

Ok

[Ballyhoo77]

I think that is pretty much normal for all of us. Try not to worry I know it's hard. Could be a long time before you need treatment or ever for that matter. Wishing you the very best.

[Ironj in reply to Ballyhoo77]

Thank you for the kind words I really need it and I hope I never need treatments.

[MsLockYourPosts Passed Volunteer]

You probably should restrict your posts to community only. For those already up click on the v next to more, then edit and scroll to the bottom of the post and change the setting to community only.

Only the original post can be "locked". The setting on it controls the privacy of all replies to it. You often get more responses to locked posts, because many are careful about their privacy. Anything unlocked can show up on google, Facebook, twitter, etc.

There are other members in your area and there is an in person support group through CLL Society in NYC (look at the top of the home page). I urge you to get to at least one of the meetings. Just being in a room with other CLL patients is very helpful.

[MsLockYourPosts Passed Volunteer]

PMs here are called Chat.

[Ironj in reply to MsLockYourPosts]

I’m using an iPhone and it just has a reply , nothing that says chat.

[Cllcanada Top Poster CURE Hero in reply to Ironj]

On the iPhone it uses symbols... like these..

top menu..

💬💬

[annmcgowan]

Hi we are all anxious at first diagnosis you are not alone.

I have used this site to educate and support me emotionally through my difficult times.

You have come to the right place.

Take care

Ann

[Ironj in reply to annmcgowan]

Thank you Ann

[annmcgowan]

No problem take care.

[Flabal]

Hi. We all here know how you feel. And we also felt like you feel. But most of them will also be able to give you lessons in strength. I am just going to start treatment and feel just like you do. If you would like to chat please feel free to hit me up. I’m the same age as you.

[Ironj in reply to Flabal]

How long have you had it for ? What is your treatment ? I hope your treatment goes well.