I think my body Thermostat is broken - CLL Support

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I think my body Thermostat is broken

DaveGH profile image
6 Replies

Back in November I was diagnosed with CLL and AIHA. At that time I was suffering from night sweats. The prescription of Prednisone stopped that until it was ramped back down. Now, if I drink something hot or take a hot shower I break out into a full body sweat. I am beginning to worry about summer and how my body will react to warmer weather.

Anyone else experiencing this?

Dave

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DaveGH
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6 Replies
virdieblue profile image
virdieblue

Those are EXACTLY the words I used to my onc/hemo. No words of wisdom but once I started Ibrutinib the problem went away.

Virginia

fell profile image
fell in reply to virdieblue

I have that experience as well. Just started Ibrutinib yesterday so will be curious to see if it goes away.

virdieblue profile image
virdieblue in reply to fell

Keep us posted! The first time I took the pills I posted to this site that I was sitting there waiting for the earth to shift on its axis!

Virginia

fell profile image
fell in reply to virdieblue

Lol, I keep checking my neck and armpits 🤞

DaveGH profile image
DaveGH

Well, I can’t wait to hear if Ibrutinib fixes it for others too.

I told my hemo this too and he just looks at me. I told my wife I will tell him every time I see him!!!

W00dfin profile image
W00dfin

Please take care that the steroid didn’t mask the symptoms of an underlying infection

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