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CLL Support Association
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Oncological Nutrition Consult

Hello everyone...hope you all are doing ok. I came across an on line article written by the wife of a cll patient re diet. Before I get into it suffice it to say I don't buy, cook or eat processed foods, drink lots of filtered water, treat myself to an occasional glass of red wine with my hematologist's knowledge and consent, eat lots of fresh fruit and veggies and basically eat clean...oh and I drink a cup of Numai Organic Golden Tonic Tumeric Tea every day (my hematologist says tumeric is ok...anti-inflammatory. This woman whose blog I read says they don't eat white rice, white potatoes, no beef or pork but do eat turkey and fish...so, long story short I will be having a nutritional consult at my hematologist's office soon....will let you all know how it goes.

Be Well,

Dianne

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Auto correct: Oncological

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Corrected your title. You can correct your submissions by selecting the 'v' under it and then selecting 'Edit' :)

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Thanks AussieNeil......how do I lock my posts?

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It’s fairly simple to do Dianne. If you wish to lock your post, select the downward arrow at the bottom of your post and click on 'Edit'. You will see an option called 'Who can see my post'? It is currently set to 'Everyone'. Just click on the 'Only followers in my community' to lock it.

Newdawn

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thanks Newdawn....so if I post something and do that will all future posts be locked or do I have to do it for every post?

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Only the ones that you post like this one. You need to restrict each one by simply changing the tick box. That ‘locks’ all the responses too which makes people more willing to answer and share information. You naturally don’t have to restrict all your replies but be aware when you respond to a post that may be unrestricted.

These posts can find themselves on the net and even F/B if they’re not restricted to the community and that matters if people have shared delicate information or used an identifiable avatar (which isn’t recommended).

Newdawn

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Hope it goes well Dianne. I suspect my haematologist would be fairly clueless about nutritional matters apart from the obvious ‘eat healthily’. I had to convince him I needed a VitD test!

Is this a particular specialism in your clinic?

Newdawn

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Hi Newdawn...my clinic is the H. Lee Moffitt Cancer Center in Tampa, Florida. I can tell you I took care of alot of cancer patients in my nursing career and it's not unusual to bring in other disciplines i.e. a nutritionist, a psychological consult if the patient is open to and in need of these ancillary professionals etc rather than simply focusing on killing the cancer. Some people suffer from depression, some have no clue re what to eat/what not to eat. So my center treats the body as a whole. My first visit to Moffitt was scary to me and they asked me alot of questions including if I was depressed and at the time I said yes and they wanted to set me up with a therapist right away...my answer was maybe later which I've been thinking more about lately as my husband isn't very supportive.

Best Regards,

Dianne

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Sounds to be an excellent Centre with a holistic approach Dianne but in stark contrast to my haematology unit where there isn’t even a specialist nurse and they’d be no offer of specialised nutritional advice. Psychological services are badly overstretched here too I’m afraid.

Best wishes,

Newdawn

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So sorry to hear that Newdawn....isn't it great that we have this forum?

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I heard also Chaga tea is great for cancer and blood , see a naturopath Dr before taking , diet is important , nutrition referred to as Nutraceuticals

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Hello Canuck901......I did see a functional/integrative doctor last summer. She recommended dandelion tea but I have ragweed allergies. She also mentioned burdock root tea but that can increase stomach acid and I am already on a med for acid reflux. As for chagra tea do you know if it has any caffeine in it? I can't drink regular or decaf tea or coffee because I get palpitations and a racy heart.

Best Regards,

Dianne

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Hi Chaga is a mushroom that grows in the wild on trees and it does not caffeine

Google it’s benefits and naturopaths recommend it

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