Spooked at first, news of having CLL but digesting it..

After being diagnosed recently w CLL, and hearing the news it didn't seep in at first, now it has.. it's getting there I should say..after understanding some what of it, and reading others stories, and articles I read, I am not so wound up, last 3 nights I have slept better, and just accepting it, and thinking positive and living life! For me, things that come into your life that are not great, I learn from it, try not to let it take hold of my life, and LIVE LIFE! It sounds great, reading it back what I just wrote, I'm a strong person been told, and with God's help.. and LIVING LIFE, not let it live you! THINKING POSITIVE.. NEED to stay busy!!

[Hidden]

You got It Ames! Happy that things are calming down for you.

wishing you the best-bill

[PaulaS Volunteer]

Hi Ames,

I'm so glad you’re feeling a bit better now. It's great that you're thinking more positively and are trying to learn from the hard things that come into your life. Not always easy (I'm not very good at it myself), but it's a great attitude and I can sense your determination to do it.

You might like to read these posts written especially for newly diagnosed folk. They are a collection of points gathered from the experiences of many folk on this site, and are suggestions for "things we can do" to help our journey with CLL. Nothing complicated, just simple, do-able things.

healthunlocked.com/cllsuppo...

healthunlocked.com/cllsuppo...

healthunlocked.com/cllsuppo...

Do let us know how you get on, as you continue on your journey. Just joining this group is a great start

best wishes,

Paula (in Sheffield, UK)

[CLLCalifornia-USA]

Hi Ames,

So glad your days are getting better. God will be there to walk you through everything. You are strong and will find support on this forum to guide you through some difficult times. Questions....just ask. There's a wealth of knowledge and experience from this group. I feel You'll be right at home here. Welcome, Sally (USA)

[UK-Sparky]

Well done Ames67! Love life is key, yes it is cancer but treatments are available and more novel treatments are being developed so keep well in body and mind and welcome to the club!

UK Marc

[Oleboyredw-uk]

Hi Ames,

Welcome to the community, I appreciate it is not one you'd select to be in, however, a warm welcome anyway. Three important things (in my opinion):

1: Try to control the panic and worry, CLL is normally a very slow burner so you should have time to contemplate what is happening and make your decisions

2: Read Paula's posts about coping with CLL, she has provided the links above, they are great reading that have had a lot of research

3: Ask questions, we all have experiences that we are happy to share.

4: Live life, enjoy it (don't get hung up with CLL).

OK that was four by we all like a bit more out of life that we expect!!

best, rob

[Amelie1979]

My life is better since I have been diagnosed - I do more of what makes me happy, and I don't wait for "later"... Keep your spirit up!