If anyone has not seen this talk out of Ohio s... - CLL Support

CLL Support

23,088 members39,645 posts

If anyone has not seen this talk out of Ohio state - they should watch it. It is very good. “ The Treatment Landscape for CLL”.

Hoffy profile image
24 Replies

Dear CLL streamers,

We are extending the time for the stream to be available to you through the weekend. We hope this will help everyone have a chance to view it at their convenience. It is recommended that you use either Firefox or Internet Explorer as your browser. (Google Chrome and Safari are presenting playback issues). Thank you for your patience.

go.osu.edu/TreatmentLandsca...

Thank you for joining us for “Ask the Expert: The Treatment Landscape for CLL”.

JamesCare for Life Team

Written by
Hoffy profile image
Hoffy
To view profiles and participate in discussions please or .
24 Replies
BeckyLUSA profile image
BeckyLUSA

Phenomenal presentation! A lot of excellent information!

BeckyL

Hoffy profile image
Hoffy

Page 46 is a very important graph.

BeckyLUSA profile image
BeckyLUSA in reply to Hoffy

Hoffy, which graph was on pg 46? I did not see any pg numbers in my view.

Becky

UK-Sparky profile image
UK-Sparky

Very positive and moral boosting. Thankyou for sharing, love to download and give to my medics

Hoffy profile image
Hoffy in reply to UK-Sparky

I have a copy of the presentation and we'll see if there's a link for downloading it. If not I could maybe try to upload it to the site.

UK-Sparky profile image
UK-Sparky in reply to Hoffy

Brilliant I am sure my CLL specialist would love to see it

Marc

Jph02006 profile image
Jph02006 in reply to Hoffy

That would be great. Thanks

colincll10 profile image
colincll10 in reply to Hoffy

hoffy

I have looked at this website to try and send you my e mail privately but imsuch an IT twat I cant see how to do that sorry , I really would like to have a copy of Doctor awan presentation it was the best thing I have seen and is so much information and I think hope for us Cllrs , would you be kind enough to send me a copy of the presentation to my business e mail a i have assistant that can down load stuff there it is colin@colinwrightsurveyors.co.uk thank you in anticipation

many thanks and good luck as well --I have a wee girl friend of my daughters 21 also with acute leuk and its returned these drugs may help her I hope so ill keep on at goverment and medical council one has to try eh

dr awans 30 people are amazing I love the graph and the 15 year showing it gives me fresh hope

Hoffy profile image
Hoffy

I just posted page 46 separately: healthunlocked.com/cllsuppo....

Link added by Admin

Salohcin profile image
Salohcin

A great presentation and made a lot of sense to me and a nice positive way to start the weekend! Many thanks for sharing it

David

Peggy4 profile image
Peggy4

Music to our ears 😀

Bchh profile image
Bchh

This is a great presentation. I learned a lot. Thank you for posting this.

Jm954 profile image
Jm954Administrator

Excellent presentation, I watched the whole 1hr 30 mins and the time flew by. Thanks for posting.

arthurschneider profile image
arthurschneider

I am in a clinical trial at Ohio State and Dr. Awan is my trial doctor. I think he is just terrific.

LynnB1947 profile image
LynnB1947

Excellent presentation but the video kept stopping & starting. I hope this makes it to Youtube. I get a better stream from them.

Glad we've got folks like Dr. Awan & Dr. Byrd & Dr. Keating & Dr. Kipps & Dr. Sharman & Dr. Koffman & Dr. Lamanna, etc. on our team.

colincll10 profile image
colincll10

id love to copy this and tried to save this but all I got was the website link which is still open but may go

can you e mail a copy and we can save and show to our group at maggies and to the Scottish msp and the health group I attend and this is so good new for the likes of the young girl we di a charity gig for shes twenty one and had a recurrence --wonder of they would help with venetoclax ? our docs dont seem to know about trials here in Aberdeen

the venetoclax? and the imbruvica? sound like they way to go or even the newer improved version even more targeted I cant spell

I thought I was slow growing but he said a couple of things that upset me I sweat each night and though it doesn't bother me drying a tee shirt at neck and wee bit back does that mean its growing quicker I odnt have blood test until april however his mutation explanations were good - I just hope we dont have the really bad guys as he put it , but it makes me even more keen to get the doctors to start this immunology going in Aberdeen after w and wait --im ok with a little pain and ongoing rashes if im still here eh

I do get the nose and throat problem but still fighting them weekly in winter --no sweats during the day

so can we get a copy as it so long it would be great to show others and its maybe going away from here as it was stated then we have lost the lecture

Hoffy profile image
Hoffy in reply to colincll10

If any one wants to message me with their email address I can send them the presentation, Hoffy

canadagoose profile image
canadagoose

Dr. Awan was my doc for 3 weeks last year when I was an inpatient. A wonderful person.

danter profile image
danter

Fantastic preso.....is there any way you can send me a copy of the preso to my email?

AussieNeil profile image
AussieNeilPartnerAdministrator in reply to danter

I've deleted your email address for your protection. Please exchange email addresses via a Private Message to avoid spam, etc.

support.healthunlocked.com/...

support.healthunlocked.com/...

Neil

Hoffy profile image
Hoffy in reply to AussieNeil

Neil,

Thanks

Hoffy

danter profile image
danter in reply to AussieNeil

Hi Neil,

Many thanks for doing a great job with "administration" of this and deleting my email address......sorry but I hadn't thought about the potential issues.

I've since had an email from Mark and replied to him. He'll send it on soon.

Glyn

Hoffy profile image
Hoffy in reply to danter

I will send it.

danter profile image
danter in reply to Hoffy

Many thanks again Mark.....I've also replied to your home email .

Not what you're looking for?

You may also like...

Does anyone know if the Indian pharmaceutical industry has good result in the treatment of CLL 17p?

Hi! I am new My father has CLL 17p since 2013. He has to take imbruvica for all his life. We live...

BTK inhibitors for the treatment of CLL - the current state of play of 'brutinibs'

In just a short time, in many places, BTK inhibitors (BTKi) have largely replaced...

Ask the expert Ohio state talk. Slide 46. PFS for treatment naïve patients on imbruvica Vs TN FCR patients.

There were only 31 patience on the imbruvica group in blue. This group had mutated and unmutated...

Determining if you'll never need treatment. It is feasible and safe to stop specialized follow-up of asymptomatic lower risk CLL?

Regular readers will have often heard that around 30% of those diagnosed with CLL never need...

Jakavi a Janus kinase inhibitor ; does anyone know about this Med for the treatment of CLL

I met someone in the waiting room at MDA and he told me about this medication . He has CLL was...