Well it has been a roller coaster making a decision for my first treatment. I have decided to go with the ACP 196 trial at NIH and was approved today. As much as I adore Dr.Byrd and OSU, it would have turned my life totally upside down travelling between DC and Columbus for 14 months. I am currently in Portland, OR visiting with my son, wife, and 2 yr. old and 2 week old grandbaby. I have 2 (3 and 1O) near us at home.
I am hoping that the Acalabrutinib will knock things back enough to buy me time until they get the combos further along.
Thanks your for all your support, recommendations, kind words, etc. I have read all the postings in both the ACP 196 and OSU's triple and wish all of you CR's, MRD-, and living life to the fullest