Dr Sharman's inaugural guest blog on Venclexta... - CLL Support

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Dr Sharman's inaugural guest blog on Venclexta / Venetoclax / ABT-199, by Tom Boyd; Essential reading if you are considering this treatment

AussieNeil profile image
AussieNeilAdministrator
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Considering treatment with Venclexta (or its myriad names) or Ibrurinib (and its myriad names) or ACP196/acalabrutinib (and I'm sure it will soon gain another name)?  Then make certain that you first read this guest blog:

cll-nhl.com/2016/04/venclex...

Incidentally, I'd suggest that the word 'except' was not intended in the first sentence of the section: 'Should I run off to the nearest major cancer center to be treated with this new agent?

If you do not have the 17-p deletion mutation, then at this time you could only receive this drug, except as part of a clinical trial.'

Neil

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Cammie profile image
Cammie

Very interesting 

Thanks

It is early in the  testing of Venetoclax.  However, various researchers are talking about a cure by combining with a ACP-196 or Ibrutinib.  This means that you go off all medicine.  At the same time inexperienced doctors will kill patients as highlighted in the article due to tumor lysis.

AussieNeil profile image
AussieNeilAdministrator in reply to

Another good reason to see a CLL specialist when you need treatment...

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply to

Like my friend... Randy Shirley

patientpower.info/blog/pati...

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