I met yesterday with a doctor from our local research hospital. They have a specific CLL program. Everything the doctor talked about are things I have been reading. It is such and organized program I felt a sense of relief. After 3 1/2 years into this he staged me at one (even with my questionable genomics) - which was a welcome surprise.
To the newbies- at diagnosis I thought life was over. We are so fortunate to live during this period of discovery!