Will You Tell Your Story to Help Advance Care?

Dear fellow people living with CLL:

We all dream of a cure and, until that can be achieved, we want access to new medicines to help us live better and longer. I am someone who believes it is important for us to tell our stories of living with CLL to leaders in the pharmaceutical industry to inspire them to work harder for us and to better understand our needs and concerns.

To that end, I am putting together a virtual panel of patients where we tell our stories via our webcams for 1 hour on a specific day later in January. Would you be available to help? I am specifically looking for some English-speaking and some Spanish-speaking CLLers and caregivers from the U.S., Canada and UK/Ireland and Europe.

If you would be willing to help and have a webcam, please contact my colleague, “Patient Café” producer Autumn Eadon, at autumn@patientpower.info. Let her know where you live and the best time to reach you by phone.

Thanks for helping me in our efforts to inspire the people who may be developing newer and better medicines for us. I look forward to you joining with us!

Best regards,

Andrew Schorr, CLLer since 1996 and Patient Power Founder

1 Reply

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  • andrew;

    I have posted an affirmitive to Autumn ia email.

    regards

    Mike

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