At the April 2015 CLL Patient Education and Empowerment meeting held in conjunction with the CLL Research Consortium meeting at UCSD in San Diego, Dr. Wierda from MD Anderson wrapped up all the information provided previously at the conference and posted on the website about targeted therapies (BCL-2 inhibitors, kinase inhibitors, monoclonal antibodies and high-risk disease) to look towards the future.
He presents a well organized approach based on details of the particular patient’s need here: cllsociety.org/2015/11/targ...
I also have a personal update in my blog: bkoffman.blogspot.com. Still have my cold but it is not getting worse. Amazing since I only got 3 1/2 hours of sleep last night.
Today met with other nonprofits at the wonderful Lymphoma Coalition conference. I learned best practices from other advocates from everywhere from New Zealand to Barbados to Turkey. Some are even tinier than the CLL Society with only one or two volunteers, others are enormous with 100 plus staff and all had much to share. You will change what we are doing on the CLL community.
Tomorrow is the CLL Research Consortium meeting. This is a real research meeting, often as much bench science as clinical, but I am glad they have decided to ask for the patients’ perspective in the early development of research.
Then the ASH joy and craziness begins.
CLL Support Association Cambridge CLL Meeting/conference - Sat 21st June 2014:
Dr. Wierda on the paradigm shift in CLL.
