Imbruvica adverse effects. : Dr.Richard Furman... - CLL Support

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Imbruvica adverse effects.

MsCLL profile image
MsCLLCLL CURE Hero
14 Replies

Dr.Richard Furman and Dr. Jennifer Brown MD PHd explain adverse effects of Imbruvica and treatment in this video.

onclive.com/insights/b-cell...

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MsCLL
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14 Replies
wroxham-gb profile image
wroxham-gb

Reads good. Thanks.

Sue

wroxham-gb profile image
wroxham-gb in reply towroxham-gb

I just went into the part which concerns me DAvid, CLL. It's very easy to find in the list.

Hope this helps.

Sue

David73 profile image
David73

Which part of the article should I look at? There are so many.

wroxham-gb profile image
wroxham-gb in reply toDavid73

It's under most popular right now.

Regards

Sue

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin

MsCLL

Thank you for adding an explanation to accompany your link, to information about adverse events. (I have edited my first reply] Links posted alone without a commentary/explanation are removed to ensure link destinations are understood.

It appears for some reason the link does not work for all user technologies and the adverse events video can't be found easily? .

Will try other methods to access this video , may I suggest you lock the parent post and this thread to community only to aid open discussion? .All drugs and CLL treatment's carry risk of adverse events, there is less information available about the newer drugs , thank you for posting this

Nick

MsCLL profile image
MsCLLCLL CURE Hero

Dr. Richard Furman and Dr. Jennifer Brown discuss adverse effects with Imbruvica in this video. You can go to the main page of this Website go to CLL DATA AND THERE ARE MANY GOOD VIDEOS regarding NEW AGENTS and updates in CLL. Take note in the drug insert on Myalgia and Arthralgias.

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin in reply toMsCLL

Thanks for adding an explanation to accompany your posted link in the parent post . Can you help? It seems the link you posted to the video you mention does include the page address in the URL, but when used I am directed to the first page of the site , this also happens for me from web search returns also.

Onc-live is a website where clinicians share complex and current information and perspectives Is this video available only for member's of the website?

If it is not behind a wall

How do you arrive at the video from the home page?

Nick

PaulaS profile image
PaulaSVolunteer in reply toHAIRBEAR_UK

Strange but when I click on the link on my desktop PC, I'm taken to a general page of the OncLive site. But when I click the same link on my Smartphone, I'm taken straight to an article called "Ibrutinib-related adverse effects". The video is there, freely available.

Paula

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin in reply toPaulaS

Thanks Paula, I have Dropped in from time to time to Onclive and circulated some of their videos in the past, Not had this problem before, have been using my laptop with try a tablet to see if that helps.

There have been a number of posts recently from member's sharing experiences of adverse effects hearing what the clinical experts are saying about this is important.

wroxham-gb profile image
wroxham-gb

This is really strange, it has changed from what I was seeing. Cannot see anything about CLL now or video. Sorry for confusion DAvid.

Sue

PaulaS profile image
PaulaSVolunteer in reply towroxham-gb

Hi Sue, When I click the link on my PC, I can't see anything about CLL either. But if I then go to "Leukaemia" (on the left hand side of the page), it takes me to some interesting articles about CLL related stuff. None of those articles are "Ibrutinib-related adverse effects" though.

However, if I click the same link on my Smartphone, it goes straight to that Ibrutinib article and the video.... It's well worth reading and viewing - if you can find it. :-)

Paula

wroxham-gb profile image
wroxham-gb in reply toPaulaS

Thanks Paula, I'll try it.

Good wishes

Sue

Just tried again. No mention of CLL or anything else on left hand side. It was there now it isen,t. Seems crazy. It's also now asking for sign in or register. I've given up.

Even gooder wishes.

Sue

PaulaS profile image
PaulaSVolunteer in reply towroxham-gb

Sorry it doesn't work for you, Sue. I've never been asked to sign in or register - either from desktop or phone. (But maybe I will be, tomorrow!). As you say, it seems crazy...

Thanks for the good and gooder wishes,

Good wishes to you too, :-)

Paula

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin

If in the UK and you experience side effects (also known as adverse drug reactions ADRs) please inform your doctor, the company and you can report events to the MRHA through the Yellow Card Reporting Scheme. UK patient’s can report adverse drug reactions {ADR} using the on-line reporting scheme.

Few members of the public are aware that they can and should report themselves, only about 7% of reports come from patient;s themselves.. This scheme is important to identify trends which may emerge about unknown events as new technologies are fast tracked to get needed treatments to patients.‘It is important for people to report problems experienced with medicine or medical devices as these are used to identify issues which might not have been previously known about’

The yellow card reporting scheme website can be accessed here yellowcard.mhra.gov.uk/

Recent posting of Imbruvica (ibrutinib) side effects taken from the company website,, prescribing Information & partial list of drug interactions healthunlocked.com/cllsuppo...

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