I had a CT Scan last Wed. & received the results of my CT scan but it was through a message so who knows when I'll be able to ask the Dr. my questions. But based on this statement "extensive lymph node enlargement essentially in all of the lymph node areas" could this be why I am "sore" in areas?
I am seeing a new CLL Dr. (my insurance no longer covers Stanford & I just couldn't make the trip to UCSD anymore).
I am so exhausted and know that treatment is coming soon (the dr. in San Diego was ready in June & now this Dr. is saying probably soon based on the CT scan & the blood work) but in the meantime I am so scared...I am always tired, I have tried so many things that people have suggested on this board (Including extra vitamins!) , I am sore often, I have no motivation for work which after having a week off for Thanksgiving I have to put on a happy face and get ready for tomorrow....
I just want to know WHEN and WHAT to expect. This Dr. said that they have no trials (he's at UC Davis) and that it would probably be "soon". My next blood test will be this week or next depending on when I am motivated to go, then I don't see him again until Feb.; in the meantime I am supposed to get an apt. for a small thyroid nodule and another apt. because my pulmonary artery was enlarged.
Not that I have a clue what either of those things mean...
Okay vent over anyone wanting to share advice/experiences/tell me if my lymph nodes being large could be why I am sore would be great!