Is anyone familiar with CBD (CANNABIDIOL) edib... - CLL Support
Is anyone familiar with CBD (CANNABIDIOL) edibles? Or is anyone uses them?
Smoke 'em ...if you got 'em... 'edibles'...do you mean hash brownies?
How are you doing on ibrutinib?
I apologize for replying late to your email. Unfortunately, I have never been good with smoking. I have talked to two other cancer patients whom I met at my oncologist office (thyroid & bladder) and they were telling me that their tumors shrunk by using edible CBD even before their treatment started. They told me that CBD is even more effective used by leukemia patients (these guys seemed to know what they were talking about). But, I would love to hear from any CLL comrade who uses them.
I am doing good with ibrutinib. I have been taking them for the last 32 days and majority of my enlarged lymph nodes have disappeared. I have been on ibrutinib + rituxan (once a week infusion). Tomorrow, I am seeing my oncologist to find out if I need to continue with rituxan. I am sure he will order CBC and the other goodies to make sure I am OK. I feel tired and I am sure my white blood counts are off the chart (we both expected that) and most likely my red blood counts are low but hopefully this treatment hasn't made me anemic. I check my blood pressure every two hours and it is definitely lower than usual which explain why I am tired. I will post my progress for everyone else to view once I have better idea as what is going on with my body.
This is a topic of interest for me (scientifically, not personally) since my own battle with CLL is still pretty quiet at the moment. But there has been a lot of preliminary research on this topic which is interesting. I am sorry I don't have any links to journal articles at the moment, but a quick Google search will probably give the history (the initial Israeli researchers that were the first ones to identify THC as a possible treatment for certain types of cancer). Last October British researchers showed that THC can kill leukemia cells:
huffingtonpost.com/2013/10/...
And Spanish researchers are showing that it might be effective in treating breast cancer. Watch the video.
collective-evolution.com/20...
The non-pyschoactive component, CBD, has been shown to be quite effective in treating epilepsy. Sorry I don't have my journal articles handy, but a Google search can give you a lot of information. At any rate, I am not a medical doctor, and I am not supporting anyone using these medications without medical advice, but as a scientist I do find it interesting to speculate on this.
Great, you maybe the right person to ask the next question. Any info about DCA (DICHLOROACETATE)? There is a place in New York that sells them in a pill form. Anything is appreciated.
Best.
Shazie
Sorry. I don't know anything about DCA or DICHLOROACETATE except what I read on the cancer.org website. Personally, since the new targeted therapies are now coming out for CLL, it seems to me that it makes more sense for us to go the standard routes with Ibrutinib or Idelalisib, not to mention the even newer treatments coming on line like ABT-199, and the second generation Ibrutinib that I heard about from Dr. Furman a couple of weeks ago. I just read about the new Phase II trial with the UCSD CD44 Binding Peptide called A6 which also seems very promising. These are the things that we should be waiting for.
