Hello everyone I don't often put messages on here-but-this week is the 17th (or if you believe my wife) my 18th year on watch and wait. Just thought I would share that with you.
Is it 17 or 18 years I've lived with CLL? - CLL Support
Was diagnosed just after 50th birtday. At the time I was working in Qatar.The Consultant,an Iraqie called Kakhil Adbul Al Rakhman,said I know nothing about CLL but I will find out.At this time gaining information was hard.Back Up had some leaflets and there was a John Clees video called,I think,So you have CLL.
I saw Khakil for the first 10 years and we learnt together.At first I saw him every month.We became quite good friends and appointments often followed long discussions around Christianity and the Muslim faith.
I am still at stage A and have widley fluctuatin platelets and white counts.My hemoglobin remains normal.
Hope you find this informative.
In the words of my Consultant at last visit "don't know what you are doing but keep on doing it. I do not have a special diet but do not eat processed or any type of fast food. Drink wine and beer but not to excess. Takenregular excersise,mostly by walking ,usually 5 miles or so 3 or 4 times a week. Make sure I have plenty of fresh air and drink a lot of water,(from the tap)
I have over the years had periods of fatigue,my remidie for fatigue is to take a long hard walk,usually works.
I just live a normal life,well to me it is normal.