Hello everyone I don't often put messages on here-but-this week is the 17th (or if you believe my wife) my 18th year on watch and wait. Just thought I would share that with you.
Is it 17 or 18 years I've lived with CLL? - CLL Support
Is it 17 or 18 years I've lived with CLL?
Well done, how does it feel? I guess you are over the worry bit now and just take it all as it comes.
Posts like this give me such hope so thanks for sharing and long may it continue for you William.
Newdawn
Yes, thanks for sharing ... I have just passed my FIRST anniversary, symptom-free(Touch Wood!), and it gives us hope!
Hi William
I'm 54 and in my 8th year Watch and Wait ... I do feel that it is important, especially to those recently diagnosed with CLL, to know that there is a wide field of experiences here in this forum .... 17 or 18 ... makes me still a novice
congratulations william1945. How old were you when you were diagnosed, and what
stage are you at now?
Was diagnosed just after 50th birtday. At the time I was working in Qatar.The Consultant,an Iraqie called Kakhil Adbul Al Rakhman,said I know nothing about CLL but I will find out.At this time gaining information was hard.Back Up had some leaflets and there was a John Clees video called,I think,So you have CLL.
I saw Khakil for the first 10 years and we learnt together.At first I saw him every month.We became quite good friends and appointments often followed long discussions around Christianity and the Muslim faith.
I am still at stage A and have widley fluctuatin platelets and white counts.My hemoglobin remains normal.
Hope you find this informative.
Hi Williams, This is cherry news. Is there any particular factor that you can share that has helped you so far. Special diet, exercise ...
Wish you the very best of good health.
Tunde
Hi TundeS,
In the words of my Consultant at last visit "don't know what you are doing but keep on doing it. I do not have a special diet but do not eat processed or any type of fast food. Drink wine and beer but not to excess. Takenregular excersise,mostly by walking ,usually 5 miles or so 3 or 4 times a week. Make sure I have plenty of fresh air and drink a lot of water,(from the tap)
I have over the years had periods of fatigue,my remidie for fatigue is to take a long hard walk,usually works.
I just live a normal life,well to me it is normal.
Willie
Wow..Maybe all those things we hear about ARE TRUE..
There is life after diagnosis and hope.
Congrads !
That's wonderful! It's great being able to share anything on this friendly, supportive forum and when we read good news like this, it is very cheering. In fact, I'm smiling right now. Thank you.
Great. Wish you the best. Would be interested to know what the counts are if you are willing to share. I made it almost 10 years but have now started treatment.
Very good to hear your story. I have not yet made 6 months...but have heard a few of these stories. Many thanks for sharing, as it really gives energy to hope!
This is so encouraging. Than you for sharing
Very encouraging indeed. I am 9months dx and really looking for a long w n w!!! 😊
That is wonderful. You're post is inspiring and encouraging. I was recently diagnosed in June with cll after getting a dx of aspergillus in May. I'm being treated for aspergillus and WW for cll. Thank you for sharing it's given me hope.