Other rare diagnoses

[MyCLLJourney]

I had cll-caused encephalitis in june of 2021. The doctor said by White blood cells went past my blood brain barrier. I was at about 149k wbc at the time. I had also been just diagnosed with a very rare form from sarcomatoid carcinoma of the bladder. Im not sure that they tested for autoimmune reasons for the encephalitis and have read that tumors (which is what i had) can cause non NMDA encephalitis. However,I seem to have recovered but i still have severe dizziness and nastigmus. They keep saying it might be permanent. Geeze, i really hope not. I walk like I'm a drunk, but I've never fallen down. Vomiting was a big issue, but i started taking a homeopathic med called carbo-veg and i take minced ginger frequently. It seems to have helped tremendously. Ive gone from throwing up 15-20 times a month to 5 or less times a month. I am just recently able to do lots of kitchen work without getting exhausted by 1pm. I have not found anyone else who had cll-caused encephalitis. I do see an occupational therapist which has helped, and am now checking into prisims and syntonic light therapy to help.