Choledochal Cyst - looking for others

[kcdou]

My 13-year-old was diagnosed with an asymptomatic choledochal cyst about a year ago, and will have surgery this April. She's understandably nervous and would love to communicate with another person who has undergone this surgery. Would love any connections we can find. Thanks!

[Shutt_01]

Hi my daughter had a choledochal cyst, she was diagnosed aged 2 in 2014 and had her surgery 2 months later in the November. Obviously she's not old enough to communicate herself with your daughter but if you'd like to ask me further questions please feel free. X

[kcdou in reply to Shutt_01]

Thanks! I've been given so much information from doctors and surgeons, but not a lot from patients/parents familiar with the procedure. I think I would ask - looking back, what do you wish you had known before the procedure?

[Caitlin-CLDF Partner CLDF]

Hi kcdou , if you're in the UK your daughter can join our social media site Hive, which is just for young people with a liver condition - cldfhive.co.uk/