HI, my six month old daughter, Emi, has recently been diagnosed with pcif this past week. She started scratching herself at 3 months and her old doctor kept telling me it was normal. We then noticed yellow eyes, he still claimed it was normal at her 6 month check up last Friday. So we then decided to get a new doctor and we made an appiontment for Sept. 1st but Monday she scratched her ear and it bled overnight so we made an appointment for that morning (Tues.) at her new doctor who was shocked by her bloody ear that was constantly dripping blood. She then scratched her nose (She scratches ALL THE TIME) and it wouldn't stop either, so they ran labs and called us that afternoon to get to the hospitl as quickly as possible because she suspected she may be going into liver failure from her lab results. We were so scared! They could not get an IV in her for nothing and our poor baby suffered but all the pokes we were then rushed to childeren's healthcare (Egleston) in Atlanta in the middle of the night were they finally got an IV and did an emergency vitamin K infusion. Ran her labs again to confirm the numbers and we were admitted. The doctor came in the next day and told us the news... It is still all so overwhelming and I'm not sure how to take it.. I feel like I should be crying my eyes out and I have cried a few times, but I'm a naturally optimistic person and I feel so bad my husband is in pieces while I'm still content and playing, laughing, and smiling with our little girl. UGGGH! I just needed to get this out there somehow.
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