My 2 year old son was admitted 3 months ago with acute hepatitis, after weeks of taking him to the GP and getting sent home and then a week of visiting A&E everyday to be sent home. He was vomiting, his urine was like lucozade and in the final week before being admitted had developed jaundis (I was told my son wasn't yellow and sent home)
He is now under the amazing team at Kings. His biopsy showed he has some form of liver disease but we are still non the wiser. He is having a metabolic profile next week so hoping for some answers after that. I am just wondering how long it took people to get their diagnosis and if there is anyone else out there with a similar situation. The unknown is playing really heavy on my mind :o(
Any advise or stories would be appreciated.