Adults with Alagilles Syndrome - Children's Liver ...

Children's Liver Disease Foundation

2,021 members705 posts

Adults with Alagilles Syndrome

Susie-Lou profile image
2 Replies

Looking for adults with AS for general advice?

Written by
Susie-Lou profile image
Susie-Lou
To view profiles and participate in discussions please or .
2 Replies
ConsMum profile image
ConsMum

Hi, my son has ALGS but is only 16, but we know quite a few adults with it too through facebook. If you are on facebook there are several Alagille groups and pages that you should be able to find by doing a search. Good luck - Jo.

bimal profile image
bimal

Hello.

I am 33 years old with mild alagille's syndrome. How can I help?

Cheers

Bimal

Not what you're looking for?

You may also like...

Kasai operation

Hi can some one help me my baby has kasai operation 9 weeks old and now its starting 2 nd week...

My baby was diagnosed with biliary atresia at 6 weeks got a Kasai at 7weeks, it has been such a scarey and emotional journey.

He is now 4 weeks post Kasai and doing really well feeding and gaining weight. I would love to hear...

Looking for positive outcome stories after Kasai procedure.

Hi, I'm simply looking for hope ... My son was diagnosed with BA at 51 days and got kasai at 53....

My daughter is 6 weeks post kasai (9weeks old) and her stools have gone pale, anybody with any experienc? Is it a sign of kasai failure?

Distended abdomen

Hello Do all children with liver complaints have large abdomens? My daughter was born at 34weeks...