Sophie is 13 months old and had her Kasai aged 7 weeks. She is doing really well and we are currently weaning her off Phenobarbital but its playing havoc with her sleep patterns! She finds it more difficult to drop off at night and wakes up shouting during the night. I guess its something we will have to ride out but would be interested to hear about other people's experiences.
Last edited by SmudgesMum
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