Hello, first post on here!
I've never had any support since my daughter was diagnosed at 4 weeks (shes now 2) and I just need a 'friend' to talk to. I feel as though I'm naïve about her condition. I've read about it but I've never been told how serious the condition is? I've been told there is a risk of liver transplant but that is all. We sore our consultant at BCH when she turned one and aren't seeing him again till she is three? Feeling really worried!