The liver life: Hi all! New to this... - Children's Liver ...

Children's Liver Disease Foundation

2,021 members705 posts

The liver life

theliverlife profile image
2 Replies

Hi all! New to this, here to inspire and be inspired. I was born with portal hypertension, and portal vein thrombosis. I've had my spleen removed, along with appendix. I'm 18 now, and will be followed by Pediatric doctors for a while. I have alot of other health problems as well but I want to connect with others. Willing to answer any questions, and willing to support you :)

Written by
theliverlife profile image
theliverlife
To view profiles and participate in discussions please or .
2 Replies
jamieh profile image
jamieh

Hi I had carolis disease as a child/teenager this affected my liver any questions if I can answer I will

paul71182 profile image
paul71182

Hi my 9mth old son has portal venus carvenous transformation , I am very worried and have read all sorts of bad things online. I think its the same as portal vein thrombosis just a different name . So will you be ok now after having your spleen and appendix removed?.

Not what you're looking for?

You may also like...

Diet

Hi, mi 6 months old son is about to start eating solids. He has biliary artresia and a kasai done...

Kasai operation

Hi can some one help me my baby has kasai operation 9 weeks old and now its starting 2 nd week...

20 days post kasai liver biopsy report

my baby boy was underwent kasai on this day 49 of birth. his eyes are still a bit yellowish and...

My baby was diagnosed with biliary atresia at 6 weeks got a Kasai at 7weeks, it has been such a scarey and emotional journey.

He is now 4 weeks post Kasai and doing really well feeding and gaining weight. I would love to hear...

Looking for positive outcome stories after Kasai procedure.

Hi, I'm simply looking for hope ... My son was diagnosed with BA at 51 days and got kasai at 53....