Children's Liver Disease Foundation
1,250 members512 posts

The liver life

Hi all! New to this, here to inspire and be inspired. I was born with portal hypertension, and portal vein thrombosis. I've had my spleen removed, along with appendix. I'm 18 now, and will be followed by Pediatric doctors for a while. I have alot of other health problems as well but I want to connect with others. Willing to answer any questions, and willing to support you :)

2 Replies

Hi I had carolis disease as a child/teenager this affected my liver any questions if I can answer I will


Hi my 9mth old son has portal venus carvenous transformation , I am very worried and have read all sorts of bad things online. I think its the same as portal vein thrombosis just a different name . So will you be ok now after having your spleen and appendix removed?.


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