The liver life: Hi all! New to this... - Children's Liver ...

Children's Liver Disease Foundation

2,001 members703 posts

The liver life

theliverlife profile image
2 Replies

Hi all! New to this, here to inspire and be inspired. I was born with portal hypertension, and portal vein thrombosis. I've had my spleen removed, along with appendix. I'm 18 now, and will be followed by Pediatric doctors for a while. I have alot of other health problems as well but I want to connect with others. Willing to answer any questions, and willing to support you :)

Written by
theliverlife profile image
theliverlife
To view profiles and participate in discussions please or .
2 Replies
jamieh profile image
jamieh

Hi I had carolis disease as a child/teenager this affected my liver any questions if I can answer I will

paul71182 profile image
paul71182

Hi my 9mth old son has portal venus carvenous transformation , I am very worried and have read all sorts of bad things online. I think its the same as portal vein thrombosis just a different name . So will you be ok now after having your spleen and appendix removed?.

You may also like...

Query for liver transplant

52 days but seems like that has failed and now doctors are insisting for liver transplant. I just...

Portal hypertension, enlarged spleen and liver damage

and it's shown now that she has portal hypertension, enlarged spleen and some liver damage. I'm just

Elevated direct bilirubin and liver enzymes

Advice needed regarding liver transplant and bilary atresia

at 2months 11days. I am curious if there are others on here with similar situation where baby...

Specialist kids liver units around the world