My daughter has Biliary Atresia, portal hypertension with grade 3 oesophageal varies. Sophie is 3 years old and has a twin sister. With recent visits to KCH it seems she is headed for a transplant and I want to know if anyone has dealt with discussing these things with their child, if so how?
The girls have started to ask things themselves, whether it be around her scar or her visits to hospital etc. I feel I need to prepare us all for the future and wondered if people had ideas they could share that may help.