I was started to Simvastatin a number of years ago after diet changes did do anything to my levels. Simvastatin did not bring my levels down at all so was put on Lipitor 20mg but when my levels were still not coming down significantly it was combined with Ezetimibe 10mg. My levels came down from around 9.2 to 5.7 then 5.2.
On the downside I was experiencing the most awful joint pains and neck pain which at first didn't associate with the medication. I did question my consultant about this on a number of occasions but was told statins didn't cause joint pain. Only after being advised by my G.P, to stop the statin for 2 weeks did the penny drop. The pain disappeared after only a few days. Then back on the medication and within a day was back to square one.
After much consideration earlier this year I took the decision to stop the tablets completely as I was by that time having the most awful muscle pain as well as joint pain and some days couldn't hardly walk. I was constantly tired and had no interest in anything. Some days all I wanted to do was sleep and had no interest in anything. Even getting out of bed in a morning was a struggle and I ached so much.
After being off any medication for 6 months the joint and muscle pains are no more and I started to get my energy back thankfully but my levels have continued to rise and after the last fasting bloods results came back at Total cholesterol of 10.1 - HDL 1.9 LDL 7.3 and Triglycerides 2.8.
I am now being seen by a different consultant who wants to start me on a very low dose statin twice a week to see if I can tolerate that and to monitor what effect it has on levels. Also I am to have genetic testing for FH. Previously although I pushed for this to be done I was not offered a test even after being told I more than likely did have FH.
In all honestly I am still reluctant to commence treatment as I can't get out of my mind how awful I felt while on statin medication but I feel so stressed about how high my levels are this is making me ill and feel constantly anxious about what's going to happen to me if these high levels remain or get even higher, especially when " well meaning" friends are constantly telling me I have to take the tablets as I could have a heart attack or stroke. I will be commencing treatment this week and see if this low dose will suit me and start to bring my levels down.
I feel that the day I was diagnosed with high cholesterol my life has completely been taken over by it. I am not the same happy person any more and it's all I think about. Luckily I have a very supportive husband but I think even he doesn't know how to handle this now.
Is there anyone else who has been in a similar position?