Head & neck lymphodemaI

[Messynessy]

HiAfter having head & neck lymphodrma for 6 years before being diagnosed i was diagnosed Feb 2023.

I am really loosing my fight to control this especially as it is really bad around my eyes & eye lids.

For the ladt year & a half there have only bern a few weeks ehen my face has been half stable.

Im wondering if anyone else has this illness & can help.

At the moment i wear tape up to 5 days a week do exercises & massage but i cant keep it under control. I have also found out recently im allergic to Nickel & trying to control thesr togeyher has become v challenging.

Its cost me my job, my house my partner , myself and its now causing me srvere mental health isdues.

Im really at a loss at how to control, manage & live with this illnesd.

Has anyone any advice or help please

Thanks so mucj x

[EvaChangingFaces Partner]

Hello Messynessy and a very warm welcome to you, thank you for finding your way to the Changing Faces community here.

I’m sorry to hear how much you have suffered in the last years with your condition and everything that you’ve lost. This must have been incredibly hard to endure and deal with. I’m sure that some days can be particularly challenging and can feel as if you don’t have any control over what’s happening, but I can hear from what you’ve shared that you are fighting it and actively engaging with the things that could help you feel a bit better and that’s really positive.

There are members here with all different forms of visible difference and it can be surprising how much people with a different type of condition can connect with you over shared thoughts or worries.

I hope you find this a helpful and safe place to hear from others and share your thoughts and feelings.

I'm also including a link to the self-help resources page on the Changing Faces website, just in case you think it might be helpful: changingfaces.org.uk/advice...

Take care,

Eva - ChangingFaces