First cavernoma and so many questions - Cavernoma Allianc...

Cavernoma Alliance UK

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First cavernoma and so many questions

Lojziz profile image
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Hi,

5 days ago my husband, 35 years old and I went to the emergency. My husband then had a terrible headache, pain in all of his body and doublevision. When we arrived he lost his speech for a while, threw up and started shiver. We got a CT and then they told us about bleeding cavernoma (which they had to Google). Now my husband has been in The hospital for 5 days. We got a MRI which confirmed The previous diagnos. He is constantly on morfine for The pain. I am scared. The thing is that we live in sweden and every doctor we talk to has little or none information about cavernoma. We havent even been transfered to a neuroclinic. His bleeding cavernoma is based in The cerebellum and The doctors wants us to wait it out - no surgery. Does anyone else have have their cavernoma in The same place? Can anyone tell me more about anything? When Will my husbands pain end?

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Lojziz
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Catherine2016 profile image
Catherine2016

Join caveromna Europe or cauk UK you may read posts relevant tp Yr husbands best wishes for recovery

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