Feeling rather isolated as a cavernoma victim in Guernsey

[splodge]

i have a brain stem cavernoma but don't know any other patients here in Guernsey. It would be great to meet up with other victims locally please ring me on 235972 so we could arrange a get together. Sarah

[CAUKcommunity16 Partner]

Hi Sarah,

I will check our database for local members. It would be really beneficial to you to join CAUK, it's free 😀

[splodge in reply to CAUKcommunity16]

I am a CA UK member already. I am just hoping to meet up with other members who are in Guernsey like me. Best wishes Sarah

[julebee]

Hi Sarah I live in Australia but I too have just been diagnosed with cavernoma in pons of brain so if you would like to connect and share stories online i am more than happy to. Regards Julie

[Bshepherd]

Hi Sarah i was diagnosed with a Cavernoma in febuary, i had 5 seizure so my Consultant decided that they needed to remove it which i have a date on the 5th of october.Im so nervous and was just wanting to chat to someone who was going through the same thing .

[splodge in reply to Bshepherd]

I'd love to have a chat please give me a call 235972. I had it removed last year and hope I can reassure you. Sorry I haven't replied sooner. Sarah

[splodge in reply to Bshepherd]

I hope all has gone well and the surgery was a complete success. Take it easy it will be worth it. Stay in touch. Best wishes, Sarah

[splodge in reply to Bshepherd]

I hope all has gone well and your operation was a complete success. I'd love to hear from you. Where did you have the surgery? Take things easy you will soon recover. Best wishes, Sarah

[Wendysparks]

I am in south africa and wish I had contact with other locally.