Feeling Better thank God
Djohnson28292 months ago
Just wanted to say that since I had my bleed I have been taking these products from this site, now I’m not making any claim but they are all...
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12th International Forum
CAUKcommunity162 months ago
In case you hadn’t heard, our annual Forum is fast approaching.
We will be in MANCHESTER on JUNE 2nd and we invite you to come along and enj...
Wishing you all a wonderful, warm Wednesday
Can those of you with cavernoma, or indeed other vascular/neurological conditions relate?
sriramkumar2 months ago
Hi Everyone, my sister suddenly got paralysis and after the CT and MRI scan doctors confirmed that its Pontine Cavernoma. Which changed all ...
Newly diagnosed spinal cord cavernoma
DanTomo2 months ago
just been diagnosed with a spinal cord cavernoma , had a bleed in November, apart from a funny feeling in my head and neck I go on as normal...
CAUKcommunity163 months ago
Wishing all of our members and followers a very HAPPY EASTER
If you or someone you know requires more information and/or support - please jo...
Migraine - so scarey after bleed.
Slharris3 months ago
I have just had my first migraine, around 2 years after a bleed around my Pontine cavernoma and it has, quite frankly, left me terrified 😯....
Cavernoma newly diagnosed
Wilkofc3 months ago
My daughter is 46 and has short term memory due to treatment for brain tumor 23 years ago. Now, after all these years, she has a vascular ca...
3 Replies3 Likes
Intermittent "migraine" in back of head for months following car accident
Shanner9274 months ago
Pain and headaches in back of head started after car accident and has been recurrent ever since ( 7 months). Son hit back of head on head r...
Hello! Coming to terms and Options
LunWong845 months ago
First time posting and apologies in advance if it's a little long-winded..! I am 33 years old, originally from South East Lond...
1 Reply1 Like
New to community
Djohnson28296 months ago
Just wanted to say hello to everyone and thank you for your post it helped me to join.
Hello my name is Derek I was diagnosed in June of 08 with cavernomas in the pons area of the brain stem and it’s genetic my brother and moth...
Maggier27 months ago
I've been diagnosed with a cavernoma back in June of this year following symptoms that were believed to be a stroke . I've just heard from t...
13 Replies1 Like
Marleniroth7 months ago
Hi, I have 20 cavernoma and the Dr told me the is nothing the they can’t do. After so many evaluations. Exam.
Mood and Fatigue
screepy18 months ago
I'm new on here, but am apart of the facebook group. A bit of background about me, I had a stroke 2016, discovered I had a c...
Gamma Knife treatment
DumindaSA9 months ago
my wife has three angiomas, all three below 1cm . and she has a cavernous angioma in superior temporal gyrus. surgeons saying facing surg...
cavernoma with anticoagulants
Trish59 months ago
Does anyone with a cavernoma take anticoagulants for another medical condition?
Spinal Cord Cavernoma
adettee9 months ago
Hi , im adette , and i was diagnosed with T10-T11 spinal cord cavernoma😪 Since 2008.
My neurosurgeon said i have nowhere to go but surgery....
Husband to a wife with a Cavernoma
Recently did MRI found that my wife having a cavernous angioma and NS says open surgeroy would be critical.
they are suggesting GK for furthe...
Right Brainstem Cavernoma
Jimmyjga year ago
I am 26 years of age, i first found out that i had a cavernoma when i was 16, due to the fact that i collapsed in class, i didn't occur any ...
E---a year ago
Hi I was diagnosed with having a cavernous at the back of my brain - this was six years ago when I was 49 years old . At the time of my MRI ...
3 Replies1 Like
Left frotal cavanoma
75johna year ago
Im a 42 year old male who has a left frontal cavanoma.was reading a post on here about a lady same age as me who seems to have the same type...
7 Replies1 Like
Recently diagnosed with Cavernoma
revdawa year ago
Hello, I have been diagnosed with cavernoma within the right cerebellar hemisphere.
I fell on my head while running, so I went to hospital ,...
I'm a newbie
fxkka year ago
Is a cavernoma a tumour?
Links to Parkinsons
KCod122a year ago
Anyone know if Cavernomas can develop into Parkinsons? My first MRI resulted in the find of my Cavernoma. No symptoms and discharged. Howe...
Swapnil102a year ago
Hi i am swapniI am from india my dad is auto rickshaw driver he is suffering from this serious brain decease and which very rare in this wor...
JeanUrmston2 years ago
I've been very recently diagnosed with Cavernomas following CT scan and MRI scan. I don't know exactly what type. At the moment Im waiting t...
Cavernoma and CLL
otonal2 years ago
Anyone know of a possible link between Chronic Lymphocytic Leukaemia Stage A and Cavernoma? Haematologist says certainly not.
Support for YOU
CAUKcommunity162 years ago
CAUK is here to support people affected by cavernoma, cavernoma.org.uk/support-fo... . You can join CAUK for free, cavernoma.org.uk/sign-up/
Manchester Young People’s CaverHub and Parent Study Afternoon
You and your child/ren are invited to attend a CAUK CaverFamilies afternoon on Friday 9 September 2016 in Manchester, funded by BBC Children...
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