Posts - Cavernoma Alliance UK | HealthUnlocked

Cavernoma Alliance UK

440 members•119 posts

Sort posts by:

Life Insurance?

Hello, does anyone know of any insurers who cover non removed cavernomas for life insurance policies? Thank you! David

Hello, does anyone know of any insurers who cover non removed cavernomas for lif...

dellis53

•2 years ago

Be the first to reply

Travel insurance

Hi, I was recently diagnosed with a cavernoma. I've been told by the doctor that I can travel but wondering if anyone has any tips/ recommendations around...

Hi, I was recently diagnosed with a cavernoma. I've been told by the doctor that...

dellis53

•3 years ago

3 Replies

Cavernoma causing auras? Or not?

Hello, I have just joined this community and am hoping someone can tell me what this finding might mean, on my recent MRI. "a small hypointense 4mm nodular...

Hello, I have just joined this community and am hoping someone can tell me what ...

Firinne

•3 years ago

Be the first to reply

Want to take advantage of all our features? Just log in!

Anyone??

Hi wondered if anyone was available to chat who had a similar experience. I feel so alone and as though no one understands what I am going through, they...

Hi wondered if anyone was available to chat who had a similar experience. I feel...

Mitzy-33

•4 years ago

10 Replies

Asparin and vaccine

Is it right people on asparin won't get covid jab

Hidden

•4 years ago

Be the first to reply

Living with Cavernomas

Hi I have multiple Cavernomas the one in my brain stem has had quite a few bleeds over the years it started when I was 14 I am now 33 the bleeds have left me...

Hi I have multiple Cavernomas the one in my brain stem has had quite a few bleed...

Mitzy-33

•4 years ago

8 Replies

Is it safe to fly with a brain stem Cavernoma?

My fist and last bleed was in 2015 and it hasn't bled since. I was wondering if it would be safe due to cabin pressure as hopefully I will be able to travel...

My fist and last bleed was in 2015 and it hasn't bled since. I was wondering if ...

Happy759

•4 years ago

1 Reply

Recently diagnosed

Following a year of migraine like symptoms, my Neurologist called me yesterday and told me I had one raspberry shaped cavernoma which was picked up in my MRI...

Following a year of migraine like symptoms, my Neurologist called me yesterday a...

LunaL

•5 years ago

4 Replies

sudden and stabbing pain in the eyes

Did anyone has sudden and stabbing pain in the eyes that the light propagates inside the light with strong headache and a sense of nausea for few minutes...

Did anyone has sudden and stabbing pain in the eyes that the light propagates in...

AntonellaS

•5 years ago

1 Reply

Newly diagnosed

I have a cavernoma in my fourth ventricle, which was discovered a month ago after a bleed. I was discharged from hospital after 2 days with an MRI arranged and...

I have a cavernoma in my fourth ventricle, which was discovered a month ago afte...

Optomisticgirl

•5 years ago

3 Replies

Brainstem cavernoma

Got a brain stem cavernous angioma like many here. Inoperable apparently, I’m in Switzerland not the UK but we don’t have an alliance like you guys. I wish...

Got a brain stem cavernous angioma like many here. Inoperable apparently, I’m in...

AndreaEdelman

•5 years ago

9 Replies

Stents

I have had 2 stents fitted 5weeks ago I woke this morning with a pain in my right arm shooting down to my fingers ... should I be worried

I have had 2 stents fitted 5weeks ago I woke this morning with a pain in my righ...

flowers24

•5 years ago

2 Replies

Airtravel

I was diagnosed with a carvanova at the back of my brain I haven’t had a bleed but I have had 2 TIAs can anyone tell me will I be ok to travel by plane...

I was diagnosed with a carvanova at the back of my brain I haven’t had a bleed b...

flowers24

•5 years ago

3 Replies

Keep thinking

Hi i had surgery to remove a cavernoma that had bled in my brain stem on the 17th may 2018. Since then i have had a repeat MRI and there is evidence of some...

Hi i had surgery to remove a cavernoma that had bled in my brain stem on the 17t...

Sopharleyoscar

•6 years ago

Be the first to reply

First cavernoma and so many questions

Hi, 5 days ago my husband, 35 years old and I went to the emergency. My husband then had a terrible headache, pain in all of his body and doublevision. When...

Hi, 5 days ago my husband, 35 years old and I went to the emergency. My husband...

Lojziz

•6 years ago

1 Reply

Our story

Hi my husband was diagnosed with a brainstem cavernoma in March 2015 and suffered a major bleed which resulted in lots of physio to get him walking again plus...

Hi my husband was diagnosed with a brainstem cavernoma in March 2015 and suffere...

Tanp65

•6 years ago

2 Replies

Advise please: CAVERNOMA

My 20 years old son was just diagnosed of Cavernoma. He has 3 seizures right in front of me. MRI says it's just one & its right in front of the head. I really...

My 20 years old son was just diagnosed of Cavernoma. He has 3 seizures right in ...

Brooksideng

•6 years ago

4 Replies

Feeling Better thank God

Just wanted to say that since I had my bleed I have been taking these products from this site, now I’m not making any claim but they are all natural and I have...

Just wanted to say that since I had my bleed I have been taking these products f...

Djohnson2829

•7 years ago

Be the first to reply

12th International Forum

In case you hadn’t heard, our annual Forum is fast approaching. We will be in MANCHESTER on JUNE 2nd and we invite you to come along and enjoy a day with...

In case you hadn’t heard, our annual Forum is fast approaching. We will be in M...

CAUKcommunity16

Partner•7 years ago

Be the first to reply

Wishing you all a wonderful, warm Wednesday

Can those of you with cavernoma, or indeed other vascular/neurological conditions relate?

Can those of you with cavernoma, or indeed other vascular/neurological condition...

CAUKcommunity16

Partner•7 years ago

Be the first to reply

Pontine Cavernoma

Hi Everyone, my sister suddenly got paralysis and after the CT and MRI scan doctors confirmed that its Pontine Cavernoma. Which changed all our lives, entire...

Hi Everyone, my sister suddenly got paralysis and after the CT and MRI scan doct...

sriramkumar

•7 years ago

1 Reply

Newly diagnosed spinal cord cavernoma

just been diagnosed with a spinal cord cavernoma , had a bleed in November, apart from a funny feeling in my head and neck I go on as normal .Anyone who's got...

just been diagnosed with a spinal cord cavernoma , had a bleed in November, apar...

DanTomo

•7 years ago

4 Replies

Happy Easter!

Wishing all of our members and followers a very HAPPY EASTER If you or someone you know requires more information and/or support - please join us at CAUK....

Wishing all of our members and followers a very HAPPY EASTER If you or someone ...

CAUKcommunity16

Partner•7 years ago

Be the first to reply

Migraine - so scarey after bleed.

I have just had my first migraine, around 2 years after a bleed around my Pontine cavernoma and it has, quite frankly, left me terrified 😯. It was a full on...

I have just had my first migraine, around 2 years after a bleed around my Pontin...

Slharris

•7 years ago

1 Reply

Cavernoma newly diagnosed

My daughter is 46 and has short term memory due to treatment for brain tumor 23 years ago. Now, after all these years, she has a vascular cavernoma. I...

My daughter is 46 and has short term memory due to treatment for brain tumor 23 ...

Wilkofc

•7 years ago

3 Replies

Intermittent "migraine" in back of head for months following car accident

Pain and headaches in back of head started after car accident and has been recurrent ever since ( 7 months). Son hit back of head on head rest after being...

Pain and headaches in back of head started after car accident and has been recu...

Shanner927

•7 years ago

Be the first to reply

Hello! Coming to terms and Options

Hello everyone First time posting and apologies in advance if it's a little long-winded..! I am 33 years old, originally from South East London but am...

Hello everyone First time posting and apologies in advance if it's a little lon...

LunWong84

•7 years ago

1 Reply

Djohnson2829

Hello my name is Derek I was diagnosed in June of 08 with cavernomas in the pons area of the brain stem and it’s genetic my brother and mother have the same...

Hello my name is Derek I was diagnosed in June of 08 with cavernomas in the pons...

Djohnson2829

•7 years ago

9 Replies

Newly diagnosed

I've been diagnosed with a cavernoma back in June of this year following symptoms that were believed to be a stroke . I've just heard from the consultant today...

I've been diagnosed with a cavernoma back in June of this year following symptom...

Maggier2

•7 years ago

13 Replies

Carvanomas.

Hi, I have 20 cavernoma and the Dr told me the is nothing the they can’t do. After so many evaluations. Exam.

Hi, I have 20 cavernoma and the Dr told me the is nothing the they can’t do. Aft...

Marleniroth

•7 years ago

2 Replies

Write a post or ask a question

Search posts

Pinned Posts

See all

Support for YOU

It Runs In The Family

CAUK is on Facebook, Twitter and Instagram.

Join the CaverCommunity

CAUK supports families

Latest poll

See all polls

Are you a member of Cavernoma Alliance UK?

Vote

Topics

All posts(3)

All things Cavernoma Alliance UK(3)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Cavernoma Alliance UK | HealthUnlocked

Cavernoma Alliance UK

Life Insurance?

Travel insurance

Cavernoma causing auras? Or not?

Anyone??

Asparin and vaccine

Living with Cavernomas

Is it safe to fly with a brain stem Cavernoma?

Recently diagnosed

sudden and stabbing pain in the eyes

Newly diagnosed

Brainstem cavernoma

Stents

Airtravel

Keep thinking

First cavernoma and so many questions

Our story

Advise please: CAVERNOMA

Feeling Better thank God

12th International Forum

Wishing you all a wonderful, warm Wednesday

Pontine Cavernoma

Newly diagnosed spinal cord cavernoma

Happy Easter!

Migraine - so scarey after bleed.

Cavernoma newly diagnosed

Intermittent "migraine" in back of head for months following car accident

Hello! Coming to terms and Options

Djohnson2829

Newly diagnosed

Carvanomas.

Search posts

Pinned Posts

Latest poll

Are you a member of Cavernoma Alliance UK?

Topics

Archive